The team at CAUK, along with our medical advisors, have been working behind the scenes to create brand new Public Information Leaflet (PIL), with the aim of educating patients, clinicians and the general public about cavernoma.
The Covid-19 pandemic has played a significant role in radically reshaping the work we do. Our team has worked tirelessly to respond to the crisis, and we’ve been able to successfully adapt and expand our services to cater for the growing number of people seeking information and support. Demand for our services is higher than ever, at a time where saturation of applicants means it has become is more and more difficult to secure funding. We need your help!
Pat tells the story of her journey with cavernoma, from initial diagnosis of epilepsy, the discovery of her multiple cavernomas and her eventual surgical resection. She talks about what has helped her cope through the years and emphasizes the importance of support and patience.
What our members say...
A world without CAUK doesn’t bear thinking about!
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