Latest News
SAVE OUR SERVICES – help CAUK raise £30,000 in their COVID-19 recovery fund.
The Covid-19 pandemic has played a significant role in radically reshaping the work we do. Our team has worked tirelessly to respond to the crisis, and we’ve been able to successfully adapt and expand our services to cater for the growing number of people seeking information and support. Demand for our services is higher than ever, at a time where saturation of applicants means it has become is more and more difficult to secure funding. We need your help!
Sonia Alex & Sam’s £10,000 Tough Mudder Challenge for CAUK!
In honour of her father who was diagnosed with cavernoma, Sonia is taking part in a Tough Mudder event to raise funds and awareness for cavenroma and CAUK!
New Peer-to-Peer Support Opportunity!
We’re looking for patients, family members or carers affected by cavernoma to join our peer-to-peer support scheme, “CaverBuddies”.
Our next CaverBuddy training will be held for members of CAUK via Zoom on May 19th at 2pm.
Latest Blogs
Celebrating 20 Years of Angioma Alliance!
Our sister organisation in the US celebrates 20 years today! We wanted to say a huge congratulations to the team for all that they have accomplished and contributed to care and research, and to the international cavernoma community.
“A Superhero has my back” – Jo Tutchener-Sharp, Founder of Scamp & Dude
We sit down with the founder of popular, hero-inspired clothing company, Scamp & Dude, to talk about how shock diagnosis of cavernoma and emergency brain surgery has transformed her life, both personally and professionally.
Matt: My Family’s Cavernoma Story
Member Matt talks about his wife, Emma, and son, Ollie, and their cavernomas.
Latest Webinars
Moving Forward with Cavernoma Treatments Webinar
Join Connie Lee, Chief Executive of Angioma Alliance, our sister organisation in the US as she talks about the current very exciting state-of-play with the development of new treatments for cavernoma.
What do MRI and CT scans tell you?
Join our science advisor Professor David White as he discusses MRI and CT scans and what they tell you about cavernomas as part of his Science for the Non Scientist.
Pregnancy and Cavernoma with Professor Catherine Nelson-Piercy
A webinar with Professor Catherine Nelson-Piercy discussing pregnancy and cavernoma – with questions from our members.
What our members say...
A world without CAUK doesn’t bear thinking about!