CAUK and all its members have made me feel ‘normal’. I am among people who know exactly how I feel. It’s as simple as that. I am not a person with a rare condition here, I am part of a group of people with the same condition. In real life I might never meet someone with a cavernoma,but here everyone has one/many. So I’m not an oddity here.
Member since 2014
CAUK is incredible. It provides invaluable support online, an informative website with vital information, access to professional opinions and face to face meetings at events, amazing lectures and the opportunity to meet others who have experienced cavernoma. A world without CAUK doesn’t bear thinking about!
CAUK does not endorse any form of management or treatment for cavernoma, nor any medication. Any individual's treatment, management or medication should be discussed with your doctor (GP, clinician) or other health-care provider.