We are Cavernoma Alliance UK
Founded in 2005, our aim is to provide support and information for all those affected by cavernoma including friends, family, carers and professionals.
With over 2800 members in the UK and worldwide, the charity aims to raise awareness of this relatively unknown condition throughout the general public as well as the medical community.
What is a cavernoma?
A cavernoma is made up of abnormal blood vessels and can be found in the brain and/or spinal cord and looks like a raspberry.
1 person in 600, in the UK, has a brain cavernoma without symptoms (asymptomatic). This equates to roughly 90,000 people – enough to fill Wembley Stadium. A spinal cavernoma is rarer than a brain cavernoma.
In this video, hear clinicians and members talking about their experiences of cavernoma.
What our members say...
A world without CAUK doesn’t bear thinking about!
The return to remote teaching has prompted concerns about whether all families will now have the hardware they need to be able to access education. However, one short term solution, at least for pupils who still do not have access to a laptop but do have a gaming console.
In light of further coronavirus restrictions put in place across the UK we wanted to let you know that CAUK is here for you. We understand that the current situation will cause further anxiety, pressure and uncertainty for many of our cavernoma community during already challenging times.
In Part 4 of our Science of Cavernoma Series, David White explores how the gut influences Cavernoma Formation.
Having recently attended and presented at the World Congress for Neuro Rehabilitation, Steve Cairns gives his take on the common perceptions for rehab strategies and outcomes
The influence of the microbiome (the bacteria in your gut) on cavernoma development N.b. In the US, cavernoma are called cavernous angioma Introductory text for