Latest News
‘Oral Contraception, HRT and Cavernoma’ webinar with Dr Zuurbier, 28th March 19:30 GMT
Join our March webinar on ‘Oral Contraception, HRT and Cavernoma’. We’re really pleased to share
‘‘The Spinal Cord and Cavernoma’ webinar with Mr Daniel Walsh, 21st February 19:30 GMT
Join our February webinar on ‘The Spinal Cord and Cavernoma’. We’re really pleased to share
Brain Awareness Week, 11th-17th March 2024
We’re thrilled to announce UK wide in-person meet-ups for Brain Awareness Week, 11th – 17th
Latest Blogs
“I knew my body better than anyone else. I learned to keep asking questions and always get a 2nd opinion.” Jac’s Cavernoma Story
My name is Jac Sinnott and I’m 39 years old. My cavernoma was located near my thalamus. I was diagnosed in July 2021 after hospitalisation following a bleed. I presented myself to the hospital with persistent symptoms which a couple of different GP practices said were migraines. Initially, my local hospital didn’t know what was causing my symptoms and it took a long time to get answers, especially as we were still in lockdown due to the pandemic.
My most recent symptoms appeared in late June 2021 and they presented as pins and needles down my left side as well as weakness and numbness on that side. I also had visual disturbances. Each episode would last for 30 minutes to an hour.
The Gut – Cavernoma Connection Emulsifiers and More with Dr. Shelley Stevens
Join Dr Shelley Stevens to discuss the gut-cavernoma connection, the impact of emulsifiers & more!
Dr Stevens is a toxicologist, and, being a mother of a child with brainstem cavernoma, Dr. Stevens has a special interest in the gut-cavernoma connection.
Steve Cairns – Recovering Movement Following Stroke & Brain Surgery, a New Perspective
Join host Steve Cairns as he talks about the changing face of Neuro Rehab and his case study with a Multiple Cavernoma patient.
Latest Webinars
The Gut – Cavernoma Connection Emulsifiers and More with Dr. Shelley Stevens
Join Dr Shelley Stevens to discuss the gut-cavernoma connection, the impact of emulsifiers & more!
Dr Stevens is a toxicologist, and, being a mother of a child with brainstem cavernoma, Dr. Stevens has a special interest in the gut-cavernoma connection.
Steve Cairns – Recovering Movement Following Stroke & Brain Surgery, a New Perspective
Join host Steve Cairns as he talks about the changing face of Neuro Rehab and his case study with a Multiple Cavernoma patient.
Let’s Talk Cavernoma – Bleeding & Strokes Explained with Daniel Walsh FRCS
Join Daniel Walsh FRCS in this clear and informative webinar on everything you need to know about cavernoma bleeding and strokes, including an extensive Q&A session.
What our members say...
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