Latest News
The Marvin Morgan Foundation; Family Fun Day & Charity Football Match
As many of you will know, friend and member of CAUK, Marvin Morgan sadly passed
Catch up on our Forum 2022
We had some great cavernoma-expert guest speakers with us on the day, and the feedback has been great! We know that not everyone in our community was able to attend, and we understand that many of you find it easier to watch the talks at your own pace – and so we’ve uploaded the recordings of the three main talks to our Youtube channel.
NEW INFORMATION LEAFLETS: Join our #ShareAndMakeAware Campaign
The team at CAUK, along with our medical advisors, have been working behind the scenes to create brand new Public Information Leaflet (PIL), with the aim of educating patients, clinicians and the general public about cavernoma.
Latest Blogs
Top Tips for Travel Insurance with Cavernoma
Travel insurance is about more than claiming money back from a flight delay or lost luggage; it exists to ensure that you can afford proper
Top tips to manage your cavernoma during the heatwave
The government has issued a Level 4 alert in anticipation of some of the hottest temperatures ever recorded in the UK, with highs of 40° possible in parts of England.
Many of you will already be feeling the effects of the soaring temperatures. Unlike many Brits who welcome the heat, those with cavernoma often find that hot weather worsens their symptoms and makes their condition even harder to mangage.Â
Pete’s Cavernoma Story – An incidental finding
My name is Pete and I have a left temporal Cavernoma. This was found as an incidental finding after an MRI for another reason. There is much more to my story and so I shall start at the beginning.
Latest Webinars
Meet others affected by cavernoma!
Join our monthly Cavernoma community catch-up for an opportunity to meet, share and learn from others who can really understand you and what you’re going through.
Moving Forward with Cavernoma Treatments Webinar
Join Connie Lee, Chief Executive of Angioma Alliance, our sister organisation in the US as she talks about the current very exciting state-of-play with the development of new treatments for cavernoma.
What do MRI and CT scans tell you?
Join our science advisor Professor David White as he discusses MRI and CT scans and what they tell you about cavernomas as part of his Science for the Non Scientist.
What our members say...
A world without CAUK doesn’t bear thinking about!