We are Cavernoma Alliance UK
Founded in 2005, our aim is to provide support and information for all those affected by cavernoma including friends, family, carers and professionals.
About Us
What are Cavernoma?
A cavernoma is made up of abnormal blood vessels and can be found in the brain and/or spinal cord and looks like a raspberry.
Find out more
COVID-19
Find out more about COVID-19, the vaccine and Cavernoma
More Info
More Information
Support for you
We aim to support people affected by cavernoma in a number of ways from providing information, putting them in contact with others, hosting events or simply being on the end of the telephone for a chat.
Our Services & Support
CaverFamilies
The CaverFamilies branch of CAUK was set up in April 2012 by parents to leave a legacy of support for their children living with Cavernoma.
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Webinars
Find out more about our support and information webinars
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Medical Alert Cards
Our medical alert cards are a free service for members of CAUK, each card is personalised with a colour photo, full name and emergency contact details.
Apply Here
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What our members say...

CAUK and all its members have made me feel ‘normal’. I am among people who know exactly how I feel. It’s as simple as that. I am not a person with a rare condition here, I am part of a group of people with the same condition. In real life I might never meet someone with a cavernoma,but here everyone has one/many. So I’m not an oddity here.
Lorna, Scotland
Member since 2014
CAUK is incredible. It provides invaluable support online, an informative website with vital information, access to professional opinions and face to face meetings at events, amazing lectures and the opportunity to meet others who have experienced cavernoma.
A world without CAUK doesn’t bear thinking about!
Abi, Surry
Member since 2012

Get in touch with us

+44 (0) 1305 213876

available from 11:00 – 14:00

Email hello@cavernoma.org.uk