Latest News

2022 Members Survey

As a user of CAUK services, we really want to know how well our work supports you.
Your feedback is invaluable and your opinion is important to us.

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We are hiring: Support Worker

We are hiring: Support Worker. We are looking for a dynamic individual to help support children, young people and adults impacted by cavernoma, an abnormality of blood vessels in the brain or spinal cord.

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Latest Blogs

Happy New Year

New Year is traditionally a time of reflection and looking forward: thinking about goals and changes and what we want from the coming months. New Year’s resolutions are talked about, decided upon and probably broken within the first week!

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Looking for the Light

At this time of year, we suddenly find ourselves waking up in the dark. Some days, a sense of gloom hangs around all day. Daylight feels in short supply. How do we make it through these long, dark nights?

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Latest Webinars

What our members say...

CAUK and all its members have made me feel ‘normal’. I am among people who know exactly how I feel. It’s as simple as that. I am not a person with a rare condition here, I am part of a group of people with the same condition. In real life I might never meet someone with a cavernoma,but here everyone has one/many. So I’m not an oddity here.
Lorna, Scotland
Member since 2014
CAUK is incredible. It provides invaluable support online, an informative website with vital information, access to professional opinions and face to face meetings at events, amazing lectures and the opportunity to meet others who have experienced cavernoma.
A world without CAUK doesn’t bear thinking about!
Abi, Surry
Member since 2012

Get in touch with us

available from 11:00 – 14:00

Email hello@cavernoma.org.uk