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Up Coming Events

Every month we host a series of regular online events for all those affected by cavernoma.  Meet, chat and share experiences with others who can really understand you!  We also welcome guest speakers throughout the year to discuss topics related to cavernoma – keep an eye on our calendar for more info. 

Monthly Events

Our online monthly events and webinars take place on Zoom.  Not used Zoom before?  Click here for a guide on using Zoom.

  • Community Chat
    11:00 on the 2nd Thursday of every month (except August)
    A great opportunity to meet, chat & share experiences online with others affected by cavernoma.
    Click here to register
  • Therapeutic Group
    19:30 on the 2nd Thursday of every month (except August)
    Join a therapist knowledgeable about cavernoma for small group therapy online with monthly themes.
    Click here to register
 

If you’re in need of support in-between support groups please get in touch with our helpline here.  In addition to the information of this website you may also find it helpful to visit the website of our US sister organisation Alliance to Cure

One-off Events

Online Webinar: Navigating changing lives: What helps?

19:30-21:00 on Wednesday the 27th of November via Zoom 

Click here to register

A lived experience panel with three CAUK members – Sandra Liddell, Carol Hutchins and Michael Nelson – who will be sharing their experiences of how life has changed with brain and spinal cavernoma and what has helped them to navigate that change.

 

Online Webinar: Emergency cavernoma surgery

19:30-20:30 on Wednesday the 11th of December via Zoom 

Click here to register

Last year Professor Andrew Brodbelt and Toni Ashworth featured on Channel 5’s Trauma Room One (episode 4) after Toni needed emergency surgery on her cavernoma at The Walton Centre. In this webinar Consultant Neurosurgeon Professor Brodbelt and patient Toni will share their reflections on this experience.

 

If you have any questions please email admin@cavernoma.org.uk.

For emotional and practical support please contact us, please see our contact page