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Up Coming Events

Every month we host a series of regular online events for all those affected by cavernoma.  Meet, chat and share experiences with others who can really understand you!  We also welcome guest speakers throughout the year to discuss topics related to cavernoma – keep an eye on our calendar for more info. 

Monthly Events

  • Community Chat
    11:00 on the 2nd Thursday of every month (except August)
    A great opportunity to meet, chat & share experiences online with others affected by cavernoma.
    Click here to register
  • Therapeutic Group
    19:30 on the 2nd Thursday of every month (except August)
    Join a therapist knowledgeable about cavernoma for small group therapy online with monthly themes.
    Click here to register

One-off Events

Personal Independence Payments (PIP) and Cavernoma
19:30 on Wednesday 24th July via Zoom Click here to register

Personal Independence Payment (PIP) is a non-means tested benefit.  It can help with extra living costs if you’re aged over 16 and have both:

  • a long-term physical or mental health condition or disability

  • difficulty doing certain everyday tasks or getting around because of your condition

In this webinar Kim Larkin, who is Managing Director of  LA Directories and a CAUK member, will explain what PIP is, when you might be entitled to it, how to apply for it and the appeals process should your application be initially rejected.

For emotional and practical support please contact us, please see our contact page