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Up Coming Events

Every month we host a series of regular online events for all those affected by cavernoma.  Meet, chat and share experiences with others who can really understand you!  We also welcome guest speakers throughout the year to discuss topics related to cavernoma – keep an eye on our calendar for more info. 

To register for our Annual Conference on Saturday the 22nd of June 2024, please click here.  Our conference will take place using zoom and once registered you will receive login details.  You will be using the same login details for every session, and you welcome to join at any point through-out the day.  The conference will be recorded and published within two to three months on our YouTube Channel.

To join our monthly events please click on the corresponding registration link below.  Sign up once and gain access to all future meetings.  To view our previous webinars, please visit our YouTube Channel.  We host our webinars using Zoom. For more information on how to use Zoom, please see our guide here.  If you have any questions please email for a reply within 3 to 5 working days.

Monthly Events

  • Community Chat
    11:00 on the 2nd Thursday of every month (except August)
    A great opportunity to meet, chat & share experiences online with others affected by cavernoma.
    Click here to register
  • Therapeutic Group
    19:30 on the 2nd Thursday of every month (except August)
    Join a therapist knowledgeable about cavernoma for small group therapy online with weekly themes.
    Click here to register

One-off Events

  • Annual Conference
    10:00 to 16:00 on Saturday 22nd June 2024
    Join us to hear from others living with cavernoma, to learn about new treatments in development and much more!
    Click here to register
  • In conversation with the Student Voice-Prize runner-up
    19:30 on Wednesday 19th of June 2024
    Join 4th Year medical student Iman Muzafar and CAUK member Charlotte Cuffe as they share their experience of raising awareness about cavernoma through the prestigious global Student Voice Prize, with Iman awarded runner-up.
    Click here to register

For emotional and practical support please contact us, please see our contact page