Up Coming Events

We’re working hard on building an events calendar on our website. In the mean time, if you wish to sign up to one of our events or find out whats coming – please contact us using the details below.

To register for our webinars or to join our mailing list for events please use the Contact form below or email us at events@cavernoma.org.uk

To view our previous webinars, please visit the blog or webinar archive.

We host our webinars using Zoom. For more information or instructions on how to use Zoom, please see our guide here.

January

  • Thursday 13th 
    11am – Tracey Community Chat
  • Wednesday 19th 
    11am– Ann Scotland Coffee Morning
  • Thursday 27th 
    7pm – David Science of Cavernoma Series – The importance of the cells surrounding a cavernoma

February

  • Thursday 10th
    11am – Tracey Community Chat
  • Wednesday 16th
    11am – Ann Scotland Coffee Morning
  • Thursday 24th
    11am – David Science of Cavernoma Series

March

  • Thursday 10th
    11am – Tracey Community Chat
  • Tuesday 15th
    4pm – CARE Study Q&A with Professor Rustam Al-Shahi Salman
  • Wednesday 16th
    11am – Ann Scotland Coffee Morning 
  • Thursday 31st
    7pm – David Science of Cavernoma Series

Rare Disease Day 2022

  • Monday 28th February 2022

Brain Awareness Week

  • Monday 14th – Sunday 20th March 2022

Annual Forum 2022

  • Saturday 25th and Sunday 26th June 2022

Caverfamilies Residential 2022

  • Friday 26th – Monday 29th August 2022 (Bank Holiday Weekend!)

Therapy Courses

To register for any of our therapy courses, please email therapy@cavernoma.org.uk.

Please see our therapy page for more information.

Our wonderful Therapists are back and running two courses starting in January 2021. If you have attended our group Therapy before, you are welcome to re-attend these groups.

Caring for someone with Cavernoma

This group is for Carers and supporters of people diagnosed with Cavernoma. This is a safe place to connect with other wonderful carers and share information and experiences. 

Living with Cavernoma

This group is for anyone diagnosed with Cavernoma who would like to meet others and be part of a supportive group discussing the day to day impact of living with a rare condition. 

1.1 sessions

4 initial sessions offered with an opportunity for an extension if required.

The opportunity to share the story of living with cavernoma and how this impacts on self, relationships, work and life.

Parent Consultations

These are an opportunity for parents/carers to share concerns about their child’s emotional well-being and behaviour.

1.1/Parents consultations to continue as normal. 

Email therapy@cavernoma.org.uk

Get in touch with us

available Mon- Fri from 10:00 – 16:00