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Up Coming Events

Every month we host a series of regular online events for all those affected by cavernoma.  Meet, chat and share experiences with others who can really understand you!  We also welcome guest speakers throughout the year to discuss topics related to cavernoma – keep an eye on our calendar for more info. 

Monthly Events

  • Community Chat
    11:00 on the 2nd Thursday of every month (except August)
    A great opportunity to meet, chat & share experiences online with others affected by cavernoma.
    Click here to register
  • Therapeutic Group
    19:30 on the 2nd Thursday of every month (except August)
    Join a therapist knowledgeable about cavernoma for small group therapy online with monthly themes.
    Click here to register

One-off Events

Misdiagnosis and surgical uncertainty: a patient’s perspective 

19:30 on Wednesday 25th September via Zoom Click here to register

Charlotte Cuffe is a CAUK member and her patient story was recently featured in a prestigious global essay competition after she was interviewed by 5th Year Medical Student, Iman Muzafar.  Join us to hear Charlotte and Iman in conversation about misdiagnosis and surgical uncertainty.  To read Iman’s award-winning essay published in Springer Nature click here.

Cavernoma management: surgery, radiosurgery and surveillance 
11:00 on Thursday 17th October in-person Click here to register

This lecture will be hosted by Mr Neil Kitchen and led by Mr Patrick Grover, both highly regarded as neurosurgeons for cavernoma surgery.  This is an in-person lecture (not a webinar) to be held within walking distance of the National Hospital for Neurology and Neurosurgery in London.  When you click to register you will receive zoom login details.  Please ignore these and nearer the time you will be sent the details of the venue.

For emotional and practical support please contact us, please see our contact page