Join CAUK today


Support CAUK today

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We are Cavernoma Alliance UK

Founded in 2005, our aim is to provide support and information for all those affected by cavernoma including friends, family, carers and professionals.

With over 2500 members in the UK and worldwide, the charity aims to raise awareness of this relatively unknown condition throughout the general public as well as the medical community.

Meet the Team

At CAUK we understand how important it is to have the right people in the right positions so we can offer the best help and support we possibly can.

Our staff, board and medical advisors are dedicated to helping & supporting our members and their families.

Professor David C.S. White CBE

honorary ceo

David is the carer of a partner with symptomatic cavernoma. He is a retired Chief Executive of a Research NGO and Research cell biologist. You can learn more about David on his Science of Cavernoma blog.

Joanne "Jo" Noakes

operations manager

Jo joined CAUK in 2018 as Caverfamilies coordinator, later growing her role to include adult & peer support. 

Sian Oliphant

office manager

Sian has worked for CAUK on a part time basis since 2016, following her retirement from a role within School administration and finance

Tracey Hammond

Member Support Coordinator

Tracey found CAUK after her brainstem cavernoma bled in 2008. Working at first as volunteer coordinator for the caverbuddies scheme and since joining the team as staff. 

Ailsa Crowe

Online Engagement Coordinator

Ailsa worked in logistics and supply chain management until diagnosis of a symptomatic cavernoma in 2015. She now works part time for CAUK in charge of all our social media. 

Michael Nelson

IT & Website Support

Michael is the carer of a partner with a symptomatic cavernoma. He started as our volunteer website maintainer, and since joined the team to oversee all CAUK’s IT needs.

Our Board of Trustees


Mark Farrar


David White

Secretary to the board

Georgina Adams

board member

Barbara Edmonds

board member

Heather Dunbar

board member

Jade Davies

board member

Joe Freeman

board member

Lee Smith

board member

Roxanna Dixon

board member

Sharon Veiger

Our Medical Advisors and Patrons

CAUK relies heavily on the advice and support of medical experts in cavernoma. Mr Kitchen, Professor Salman and Sacha Bonsor became patrons of CAUK in 2015.

rofessor Rustam Al-Shahi Salman

Prof. Rustam Al-Shahi Salman

Professor of clinical neurology and Clinical Director of the Edinburgh Clinical Trials Unit at The University of Edinburgh and Medical Advisor to CAUK.

Mr Neil Kitchen consultant Neurosurgeon giving a lecture

Mr Neil Kitchen

Consultant Neurosurgeon at the National Hospital for Neurology and Neurosurgery and Medical Adviser to CAUK.

Sacha Bonsor portrait

Sacha Bonsor

Journalist and author of a book, Dipped Into Oblivion, which chronicles her experience of having a brain haemorrhage and subsequent surgery. She lives in London with her husband and three step children.