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We are Cavernoma Alliance UK

Founded in 2005, our aim is to provide support and information for all those affected by cavernoma including friends, family, carers and professionals.

With over 2800 members in the UK and worldwide, the charity aims to raise awareness of this relatively unknown condition throughout the general public as well as the medical community.

About Us

CAUK was founded in 2005 by Dr Ian Stuart. Ian had a bleed from a brainstem cavernoma twenty years earlier and became increasingly frustrated by the lack of knowledge amongst the medical community of the condition as well as how little support and information was available.

CAUK now has over 2800 members in the UK and worldwide. We aim to provide free support and information for all those affected by cavernoma including friends, family and carers. 

The charity also aims to raise awareness of this relatively unknown condition throughout the general public as well as the medical community.

CAUK does this by organising various events such as our Annual International Forum in London, running social media support groups, signposting people for information and publishing a monthly E-newsletter.

We depend on funding from grants, foundations and the amazing fundraising efforts of our members and supporters.

Get in touch with us

available from 11:00 – 14:00

Email hello@cavernoma.org.uk

CAUK Members Survey 2021 Results

We are delighted to be sharing the results from our recent member survey. We are continually working to improve the information and resources we provide so we are extremely grateful and pleased with the feedback we have received. This year has been challenging for everyone and we are so happy that we were able to offer much needed support for our members during this difficult time.

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Hopeful Acts: Planting Seeds for the Future

Looking back to this time last year, we were all at the beginning of our lockdown journeys. Suddenly, things we took for granted could no longer happen and we had to adapt to new ways of being. Our latest therapy blog post by Fiona Holiday.

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CARE Pilot Trial Annoucement

The Cavernomas A Randomised Effectiveness (CARE) pilot trial CAUK is the Patient Group in a consortium also including senior clinicians with a special interest in

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