How Cavernoma Grow : The role of a gene mutation linked to some Cancers with David White (Science of Cavernoma)
May 7, 2021
Join our science advisor David White in a new part of his Science of Cavernoma
Founded in 2005, our aim is to provide support and information for all those affected by cavernoma including friends, family, carers and professionals.
With over 2800 members in the UK and worldwide, the charity aims to raise awareness of this relatively unknown condition throughout the general public as well as the medical community.
CAUK was founded in 2005 by Dr Ian Stuart. Ian had a bleed from a brainstem cavernoma twenty years earlier and became increasingly frustrated by the lack of knowledge amongst the medical community of the condition as well as how little support and information was available.
CAUK now has over 2800 members in the UK and worldwide. We aim to provide free support and information for all those affected by cavernoma including friends, family and carers.
The charity also aims to raise awareness of this relatively unknown condition throughout the general public as well as the medical community.
CAUK does this by organising various events such as our Annual International Forum in London, running social media support groups, signposting people for information and publishing a monthly E-newsletter.
We depend on funding from grants, foundations and the amazing fundraising efforts of our members and supporters.
Join our science advisor David White in a new part of his Science of Cavernoma
Researchers have discovered an explanation for why cavernoma – clusters of dilated blood vessels in the brain – can suddenly grow to cause seizures or stroke.
To launch our brand new fundraising campaign we wanted to tell you about two of our amazing CAUK supporters, Margaret and Dave, and the challenges they’re taking on for our new campaign. We hope they inspire you to join in and GO FOR IT!
Our member Nina shares her cavernoma story for Cavernoma Awareness Month
Learn more about our member Sarah’s experiences with her cavernoma and epilepsy.
Learn more about our member Heathers experiences with her cavernoma and epilepsy.
Join our science advisor David White in a new part of his Science of Cavernoma
Researchers have discovered an explanation for why cavernoma – clusters of dilated blood vessels in the brain – can suddenly grow to cause seizures or stroke.
The Cavernomas A Randomised Effectiveness (CARE) pilot trial CAUK is the Patient Group in a
Unit 601 (CAUK)
20, The Grove Industrial Estate,
Dorchester
Dorset
DT1 1ST
Registered Charity 1114145
Scottish Charity SC048458
Join CAUK today to gain access to our support services and free events.