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We are Cavernoma Alliance UK

Founded in 2005, our aim is to provide support and information for all those affected by cavernoma including friends, family, carers and professionals.

With over 2800 members in the UK and worldwide, the charity aims to raise awareness of this relatively unknown condition throughout the general public as well as the medical community.

About Us

CAUK was founded in 2005 by Dr Ian Stuart. Ian had a bleed from a brainstem cavernoma twenty years earlier and became increasingly frustrated by the lack of knowledge amongst the medical community of the condition as well as how little support and information was available.

CAUK now has over 2800 members in the UK and worldwide. We aim to provide free support and information for all those affected by cavernoma including friends, family and carers. 

The charity also aims to raise awareness of this relatively unknown condition throughout the general public as well as the medical community.

CAUK does this by organising various events such as our Annual International Forum in London, running social media support groups, signposting people for information and publishing a monthly E-newsletter.

We depend on funding from grants, foundations and the amazing fundraising efforts of our members and supporters.

Get in touch with us

available from 11:00 – 14:00

Email hello@cavernoma.org.uk

Remote Learning during Lockdown using Game Consoles

The return to remote teaching has prompted concerns about whether all families will now have the hardware they need to be able to access education. However, one short term solution, at least for pupils who still do not have access to a laptop but do have a gaming console.

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Lockdown 2021

In light of further coronavirus restrictions put in place across the UK we wanted to let you know that CAUK is here for you. We understand that the current situation will cause further anxiety, pressure and uncertainty for many of our cavernoma community during already challenging times.

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Annual Survey 2020

Help us to help you, by taking 10-15 mminutes to fill out our annual survey. Your feedback help guide the support CAUK provides in 2021 and beyond.

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Coronavirus Vaccine Advice

Guidelines received from the Angioma Alliance Scientific Advisory Board. CAUKS Medical Advisor Dr. Rustam Al-Shahi Salman from the University of Edinburgh Neurology, has signed to confirm this guidance and information.

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CARE Pilot Trial Annoucement

The Cavernomas A Randomised Effectiveness (CARE) pilot trial CAUK is the Patient Group in a consortium also including senior clinicians with a special interest in

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