Membership

Join CAUK today

Donate

Support CAUK today

Contact Us

Phone or Email

We are Cavernoma Alliance UK

Founded in 2005, our aim is to provide support and information for all those affected by cavernoma including friends, family, carers and professionals.

With over 2800 members in the UK and worldwide, the charity aims to raise awareness of this relatively unknown condition throughout the general public as well as the medical community.

About Us

CAUK was founded in 2005 by Dr Ian Stuart. Ian had a bleed from a brainstem cavernoma twenty years earlier and became increasingly frustrated by the lack of knowledge amongst the medical community of the condition as well as how little support and information was available.

CAUK now has over 2800 members in the UK and worldwide. We aim to provide free support and information for all those affected by cavernoma including friends, family and carers. 

The charity also aims to raise awareness of this relatively unknown condition throughout the general public as well as the medical community.

CAUK does this by organising various events such as our Annual International Forum in London, running social media support groups, signposting people for information and publishing a monthly E-newsletter.

We depend on funding from grants, foundations and the amazing fundraising efforts of our members and supporters.

Get in touch with us

available from 11:00 – 14:00

Email hello@cavernoma.org.uk

SAVE OUR SERVICES – help CAUK raise £30,000 in their COVID-19 recovery fund.

The Covid-19 pandemic has played a significant role in radically reshaping the work we do. Our team has worked tirelessly to respond to the crisis, and we’ve been able to successfully adapt and expand our services to cater for the growing number of people seeking information and support. Demand for our services is higher than ever, at a time where saturation of applicants means it has become is more and more difficult to secure funding. We need your help!

Read More »

Celebrating 20 Years of Angioma Alliance!

Our sister organisation in the US celebrates 20 years today! We wanted to say a huge congratulations to the team for all that they have accomplished and contributed to care and research, and to the international cavernoma community.

Read More »

Celebrating 20 Years of Angioma Alliance!

Our sister organisation in the US celebrates 20 years today! We wanted to say a huge congratulations to the team for all that they have accomplished and contributed to care and research, and to the international cavernoma community.

Read More »