We’re incredibly fortunate to benefit from the advice of global cavernoma experts, whose expert guidance informs our charitable activities. To find out more, please click here.
External Advisors
Professor Rustam Al-Shahi Salman, Chair and Neurological Lead
Professor of Clinical Neurology, Head of the Cerebrovascular Research Group and Honorary Consultant Neurologist in NHS Lothian
Professor Diederik Bulters, Neurosurgical Lead
Professor of Neurosurgery, Wessex Neurological Centre, University Hospital Southampton
Mr Neil Kitchen, Patron
Consultant Neurosurgeon at the National Hospital for Neurology and Neurosurgery and Director of the Gamma Knife Unit
Dr Ellie Chilcott
Postdoctoral Research Fellow, Maternal and Fetal Medicine department at University College London (UCL)
Lesley Foulkes
Neurovascular Nurse Specialist, Wessex Neurological Centre, University Hospital Southampton
Mr Patrick Grover
Consultant Neurosurgeon, National Hospital for Neurology and Neurosurgery
Dr Kirsty Harkness
Consultant Adult Neurologist, Sheffield Teaching Hospital
Mr Greg James
Consultant Paediatric Neurosurgeon, Great Ormond Street Hospital
Peetra Magnusson
Associate Professor, Department of Immunology, Genetics and Pathology, Uppsala University
Dr Anita Rose
Consultant Clinical Neuropsychologist and Director, Cognivate
Dr Stewart Rust
Consultant Paediatric Neuropscyhologist, Royal Manchester Children’s Hospital
Dr Grace Vassallo
Consultant Paediatric Neurologist, Royal Manchester Children’s Hospital
Mr Daniel Walsh
Consultant Neurosurgeon, King’s College Hospital, NHS Foundation Trust
Professor Phil White
Professor of Interventional and Diagnostic Neuroradiology, Newcastle University
Dr Susanna Zuurbier
Neurovascular Consultant, University Hospital Antwerp
Cavernoma Alliance UK Members
Helen Evans, Secretary
Charity Manager, Cavernoma Alliance UK
Jana Bergholtz
Chair of the European Cavernoma Alliance
Yasemin Cole
PhD student, Genomics and Metabolomics, University of Cambridge
Charlotte Cuffe
PhD Student, Functional Genomics, The Royal Veterinary College, and Vice-chair of Cavernoma Ireland.
Alex Ford
Trustee Lead for Research, Cavernoma Alliance UK
Connie Lee
Founder and CEO of Alliance to Cure
Iman Muzafar
Medical Student and Student Voice Prize Runner-Up, King’s College Hospital
Dawn Smith
Public Engagement Manager, Edinburgh Napier University