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We’re incredibly fortunate to benefit from the advice of global cavernoma experts, whose expert guidance informs our charitable activities.  To find out more, please click here.

External Advisors

Professor Rustam Al-Shahi Salman, Chair and Neurological Lead

Professor of Clinical Neurology, Head of the Cerebrovascular Research Group and Honorary Consultant Neurologist in NHS Lothian

Professor Diederick Bulters, Neurosurgical Lead

Professor of Neurosurgery, Wessex Neurological Centre, University Hospital Southampton

Mr Neil Kitchen, Patron

Consultant Neurosurgeon at the National Hospital for Neurology and Neurosurgery and Director of the Gamma Knife Unit

Dr Ellie Chilcott

Postdoctoral Research Fellow, Maternal and Fetal Medicine department at University College London (UCL)

Lesley Foulkes

Neurovascular Nurse Specialist, Wessex Neurological Centre, University Hospital Southampton

Mr Patrick Grover

Consultant Neurosurgeon at the National Hospital for Neurology and Neurosurgery

Mr Greg James

Consultant Paediatric Neurosurgeon, Great Ormond Street Hospital

Peetra Magnusson

Associate Professor, Department of Immunology, Genetics and Pathology, Uppsala University

Dr Anita Rose

Consultant Clinical Neuropsychologist and Director, Cognivate

Dr Stewart Rust

Consultant Paediatric Neuropscyhologist, Royal Manchester Children’s Hospital

Dr Grace Vassallo

Consultant Paediatric Neurologist, Royal Manchester Children’s Hospital

Mr Daniel Walsh

Consultant Neurosurgeon, King’s College Hospital, NHS Foundation Trust

Professor Phil White

Professor of Interventional and Diagnostic Neuroradiology, Newcastle University

Dr Susanna Zuurbier

Neurovascular Consultant, University Hospital Antwerp

Cavernoma Alliance UK Members

Helen Evans, Secretary

Charity Manager, Cavernoma Alliance UK

Jana Bergholtz

Chair of the European Cavernoma Alliance

Yasemin Cole

PhD student, Genomics and Metabolomics, University of Cambridge

Charlotte Cuffe

PhD Student, Functional Genomics, The Royal Veterinary College, and Vice-chair of Cavernoma Ireland.

Alex Ford

Trustee Lead for Research, Cavernoma Alliance UK

Connie Lee

Founder and CEO of Alliance to Cure

Iman Muzafar

Medical Student and Student Voice Prize Runner-Up, King’s College Hospital

Dawn Smith

Public Engagement Manager, Edinburgh Napier University