Up Coming Events
We run regular virtual events and in-person meet-ups, including information webinars and supportive sessions for people affected by cavernoma. As a small charity supported by volunteers, we do our best to reach as many people as possible and make events accessible to all.
Monthly Events
Our online monthly events and webinars take place on Zoom. Not used Zoom before? Click here for a guide on using Zoom.
- Community Chat (Open to all)
11:00 on the 2nd Thursday of every month (except August)
A great opportunity to meet, chat & share experiences online with others affected by cavernoma.
Click here to register
- Therapeutic Group (UK residents only)
19:30 on the 2nd Thursday of every month (except August)
Join a therapist knowledgeable about cavernoma for small group therapy online with monthly themes.
Click here to register
Group Therapy
These themed groups run as a 4-part series over eight weeks, meeting fortnightly on Thursdays from 19:00 to 21:30. They offer a gentle, supportive space to share or listen. Open to UK-based CAUK members aged 18+ where the theme is relevant. The dates below are all for 2026:
Newly diagnosed: 5 Feb, 19 Feb, 5 Mar, 19 Mar
Supporters (carers): 23 Apr, 7 May, 21 May, 4 Jun
Familial cavernoma: 18 Jun, 2 Jul, 16 Jul, 30 Jul
Spinal cavernoma: 3 Sep, 17 Sep, 1 Oct, 15 Oct
Brainstem cavernoma: 22 Oct, 5 Nov, 19 Nov, 3 Dec
To sign up, email helpline@cavernoma.org.uk. If no suitable group is available and you are UK resident, you are welcome to join our monthly open group or access one-to-one therapy.
With thanks to Axion Neuromonitoring for generously supporting this service.
Webinars
Webinar on ‘Surgical Management of Cavernoma in Children: Decision-Making, Risks and Outcomes’
19:30-20:30 (GMT) Wednesday 11th June 2026
This webinar will be led by Mr Greg James, Consultant Paediatric Neurosurgeon at Great Ormond Street Hospital and one of the UK’s leading experts in children’s cavernoma. The format will be a 35-40 minute presentation followed by questions, and will be recorded and available to watch later for everyone who registers.
Annual Events
In-Person Meet-Ups, March 2026
We would love to welcome you to one of our Brain Awareness Week meet-ups. These friendly, volunteer-led meet-ups are a chance to meet others living with cavernoma in a relaxed and supportive space. Please click the link below to register.
Everyone of all ages:
- Yorkshire, North – 6th March, 11:30
- West Midlands – 12th March, 10:30
- Online (UK & International) – 12th March, 11:00
- North East England – 16th March, 11:30
- South West England – 17th March, 10:00
- East Sussex – 17th March, 14:00
- Scotland – 18th March, 11:00
- East Anglia – 19th March, 11:00
- Yorkshire, South – 19th March, 15:00
- London – 21st March, 11:00
- Merseyside – 21st March, 13:00
- Derbyshire – 21st March, 14:00
Children with cavernoma:
Any questions? Please email helpline@cavernoma.org.uk. Can’t find a meet-up near year? We are always looking for new volunteer community hosts. Click here to express your interest.
Snowdon/Yr Wyddfa Climb for Cavernoma
Saturday 6th June 2026
Each year we climb Snowdon/Yr Wyddfa on the first Saturday in June to mark the start of Cavernoma Awareness Month. Our next climb will be on Saturday the 6th of June 2026. We’d love to have you join us as we climb the highest mountain in England and Wales. It’s a great opportunity to meet others from the cavernoma community, raise awareness of cavernoma and enjoy some spectacular views. To find our more click here.
Annual Conference
Saturday 3rd October 2026
Join us in central London at a fully accessible venue, for a full day of talks, discussion and connection for people living with cavernoma. The programme will feature leading clinicians, lived-experience sessions and opportunities to ask questions, as well as our AGM. Tickets are kept as affordable as possible, with free concession places available to anyone who needs one. Key sessions will also be recorded for those unable to attend in person. Full details are available on our registration page.
For emotional and practical support please contact us, please see our contact page