The CaverFamilies branch of CAUK was set up in April 2012 to leave a legacy of support for their children living with Cavernoma following annual family event’s run each year from about 2008 by Ian Stuart, Frank Gent and Brana Thorn.
Our aim is to build a strong community of support, information and education for children and young adults living with cavernoma, and their families
The CaverFamilies branch of CAUK was set up in April 2012 to leave a legacy of support for their children living with Cavernoma following annual family event’s run each year from about 2008 by Ian Stuart, Frank Gent and Brana Thorn.
Our aim is to build a strong community of support, information and education for children and young adults living with cavernoma, and their families.
Parents, carers and siblings are very much part of our Cavernoma Community; we actively encourage their participation in activities and events, and work to include them in all we offer.
CaverFamilies is a support network aimed at all families affected by cavernoma, this includes but is not limited to:
Children with cavernoma
Our aim is to provide a legacy of support to guide our children through each stage of their journey with Cavernoma. We understand that an early, solid foundation of support in a child’s journey is paramount.
We provide children with the tools they need to adapt their lives to the often challenging needs of their condition. We believe in making this as positive an experience as it can be and aim to achieve this by offering an extensive range of support services, listed below.
At CAUK we understand that the transition to adulthood can be particularly challenging for teenagers living with Cavernoma.
We know that thinking about your future with Cavernoma might be daunting and overwhelming, but with our support we’ll help you to feel confident and secure about the next steps.
We provide a broad range of support including:
CaverFamilies wouldn’t exist as it does today without the support and influence of the late Frank Gent. Frank, a CAUK Trustee and member with a cavernoma himself, was a key player in setting up CAUK’s events for children affected by cavernoma and their families.
In 2013 Frank organised CAUK’s very first residential weekend at Butlins in Skegness as a free event for families – a very valuable tradition which CAUK honours every year. Frank paved the way for the development of a wider support service for children and their families, now known as CaverFamilies. He was a wonderful selfless friend to CAUK.
For emotional and practical support please contact us, please see our contact page
PO Box 366
Watlington
Oxfordshire
OX10 1GF
Registered Charity 1114145
Scottish Charity SC048458