Founded in 2005, our aim is to provide support and information for all those affected by cavernoma including friends, family, carers and professionals.
With over 4,000 members in the UK and worldwide, the charity aims to raise awareness of this relatively unknown condition throughout the general public as well as the medical community.
Charity Manager
25 hours a week
Wednesdays, thursdays & fridays
Helen is responsible for the day-to-day running of the charity and has overall responsibility for its research, education and support activities. This also includes fundraising, finance, HR and IT/systems. Helen has lived experience of neurological conditions as an Autistic person, and is a parent carer.
Volunteer manager
17.6 hours a week
Tuesdays & Thursdays
Tracey is responsible for managing the charity’s volunteer delivered support services including its helpline (accessible by email and phone), peer-to-peer support and community meet-ups. She also works closely with the Charity Manager to ensure the patient voice is represented in cavernoma related research.
CAUK relies heavily on the advice and support of medical experts in cavernoma. Mr Kitchen, Professor Salman and Sacha Bonsor became patrons of CAUK in 2015. Alongside our patrons we also have an Advisory Board comprised of the UK’s leading cavernoma clinicians, scientists and patient advocates. To find out more about our advisors, please click here.
Professor of clinical neurology and Clinical Director of the Edinburgh Clinical Trials Unit at The University of Edinburgh and Medical Advisor to CAUK.
Consultant Neurosurgeon at the National Hospital for Neurology and Neurosurgery and Medical Adviser to CAUK.
Journalist and author of a book, Dipped Into Oblivion, which chronicles her experience of having a brain haemorrhage and subsequent surgery. She lives in London with her husband and three step children.
PO Box 366
Watlington
Oxfordshire
OX10 1GF
Registered Charity 1114145
Scottish Charity SC048458