Meet others affected by cavernoma!
Join our monthly Cavernoma community catch-up for an opportunity to meet, share and learn from others who can really understand you and what you’re going through.
May 24, 2022
Join our monthly Cavernoma community catch-up for an opportunity to meet, share and learn from others who can really understand you and what you’re going through.
Join Connie Lee, Chief Executive of Angioma Alliance, our sister organisation in the US as she talks about the current very exciting state-of-play with the development of new treatments for cavernoma.
Join our science advisor Professor David White as he discusses MRI and CT scans and what they tell you about cavernomas as part of his Science for the Non Scientist.
A webinar with Professor Catherine Nelson-Piercy discussing pregnancy and cavernoma – with questions from our members.
Minimally invasive approaches, cavernomas and decision making with Bassel Zebian, Consultant Paediatric and Adult Neurosurgeon, King’s College Hospital London
Cavernomas: A Randomised Effectiveness (CARE) Study discussion with Professor Rustam Al-Shahi Salman and Mr Neil Kitchen
Join our science advisor David White in a new part of his Science of Cavernoma Series, as he discusses how Cavernoma Grow : The role
CCM Genetics and You with Connie Lee, CEO of Angioma Alliance. This is a webinar from the Angioma Alliance programme, placed here by kind permission of Connie Lee.
What we think, how we feel and how we relate to other are driven by the way our brains, bodies and minds work together. During this session, CAUK therapist Fiona will explor ehow our brains and bodies search for safety and respond to danger. We’ll talk about emotions and stress and what happens when we feel overwhelmed by danger and experience trauma.
Doctor Ian Kamaly discusses what options there are for screening of both patients with known cavernous malformations and family members who may possibly be affected. He then went on to give a very useful discussion on participation in sport and other activities for patients with known cavernous malformations.
Unit 601 (CAUK)
20, The Grove Industrial Estate,
Dorchester
Dorset
DT1 1ST
Registered Charity 1197257
Scottish Charity SC048458
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