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Webinar

CCM Genetics and You

CCM Genetics and You with Connie Lee, CEO of Angioma Alliance. This is a webinar from the Angioma Alliance programme, placed here by kind permission of Connie Lee.

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They said No, I said Yes! with Will Sears

Will is an inspirational 14 year old member of CAUK through the Caverfamiles group. In this webinar where he is accompanied by his mum, he shares the story of his cavernoma and epilepsy journey and how he continues to live a full, exciting and happy life doing the things he loves, despite his condition

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Elliot Langstaff – My Experience with Gamma Knife Surgery

Do you have questions about Gamma Knife surgery also called Stereotactic radiosurgery? This is a lesser known treatment for cavernoma sometimes offered when standard surgery cannot take place. In the webinar recorded here Elliot Langstaff one of our CaverFamilies young members shares his positive experience with Gamma Knife Surgery.

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