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We are Cavernoma Alliance UK

Sometimes its just nice to reach out to someone for support or a chat.   If you need help or support, please reach out to us.

Cavernoma Alliance UK

Originally run from an office in Dorchester, we’ve worked remotely from across the UK since 2019. Our postal address is::

Cavernoma Alliance UK
PO Box 366
Watlington
Oxfordshire
OX10 1GF

Registered Charity 1197257

Before becoming a Charitable Incorporated Organisation (CIO) on 01.02.2024, our charity registration number was 1114145

Helpline

For emotional and practical support
please email helpline@cavernoma.org.uk
or book a phone call using our Calendly Booking System

For all other matters email admin@cavernoma.org.uk. 

Our helpline is run by volunteers with lived experience of cavernoma, many of whom live with neurological differences. We aim to reply within 3 to 5 working days.