Latest News
CARE TRIAL: LATEST NEWS!
Care Study site teams across the country have successfully recruited 57 participants for the first ever pilot #clinicaltrial for #cavernoma. There are now only 3 participants left to recruit before the end of April.
Young Carers Action Day: Make Time for Young Carers
Today, March 15th, we come together with organisations across the country to recognise young carers.
Every day, thousands of young people across the UK help look after someone in their family who is ill, disabled or has a mental health problem or an addiction.
Up for a challenge? Join our Snowdon Climb for Cavernoma Awareness Month
On Saturday 3rd of June we’re taking a team up Snowdon, the highest mountain in Wales, carrying our CAUK flag all the way to the summit! It’s our hope whilst trekking to both raise awareness about cavernoma and raise funds for CAUK’s services.
Latest Blog
“I really didn’t know what fatigue felt like before I had this bleed” – Hope’s cavernoma story
In June 2021 I had a sudden onset headache; the only way to describe it is that it felt like a sharp stab to the back of my head. The headache lingered for a couple of days, alongside other symptoms, like the feeling of running water down my legs and twitching in my right eye.
“If you know that someone is only a phone call or email away, it’s a bit like having a safety blanket in place” Janet’s CaverBuddy story
Janet Bunch has been part of our volunteer peer-support scheme, CaverBuddy, for many years. She tells us about why she became a CaverBuddy after her own diagnosis and what supporting others with cavernoma means to her.
“To be able to say I’m not even a year on yet, and I’m walking/talking again…is a massive bonus.” Carly’s story
Carly shares her story of how her persistent headaches led her to an eventual cavernoma diagnosis, despite several dismissals that her pain was ‘just a migraine’.