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Latest News

Updated guidance from DVLA on driving & cavernoma

Thanks to member feedback, and discussions with clinicians, it was brought to our attention that the advice DVLA’s advice to patients with cavernoma was different to it’s advice to clinicians. Earlier this year, we got in touch with DVLA to query their guidance on the rules around driving with cavernoma.  

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‘Cavernoma stories’ short films

In 2023 Cavernoma Alliance UK was approached by a filmmaker who has cavernoma, Lucy Gohm.  After her own experience with the condition, Lucy come to us in the hope that we could help her use her skills to amplify the voices of the cavernoma community by interviewing people with cavernoma and sharing their stories.  The result: two beautiful short films, featuring Emily and Sacha, and their stories of temporal-lobe and brainstem cavernoma respectively. 

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CAUK ANNUAL FORUM – this Saturday 24th June!

This year we’re really excited to be bringing you speakers from the UK and US who are global experts on cavernoma.  Whether you are newly diagnosed or have been living with cavernoma for some time, we hope you’ll find these talks interesting and helpful.

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