Latest News
Annual Conference 2024 – registration is now live
Registration is now open for our 2024 Annual Forum taking place Saturday the 22nd of June from 10:00 to 16:00 via zoom. To secure your
Snowdon Climb for Cavernoma Awareness Month, 1st of June
On the 1st of June 2024, over 35 people will be climbing Snowdon to raise awareness and funds for Cavernoma Awareness Month in June. We
Results of the ‘Cavernomas: A Randomised Effectiveness (CARE) Study’
We’re really pleased to share that the results of ‘Cavernomas: A Randomised Effectiveness (CARE) Study’ have now been published in The Lancet Neurology. This pilot
Latest Blog
“Pleased to meet you, I exist” – Flavia’s Cavernoma Story
In September 2021 I was diagnosed with cerebral cavernoma – a benign tumor in the right temporal lobe – and was told that this tumor had been with me since I was born.
“Five pieces of advice I would give to someone ahead of brain surgery…” Noellie’s Cavernoma Story
My cavernoma was located on right temporal lobe. I was diagnosed on 27th July 2022. My symptoms mainly included severe headaches that the Doctors (GPs, Neurologists) said were episodes of migraine.
Epilepsy and epileptic seizures from brain cavernoma
When people present with symptoms that lead to the diagnosis of a brain cavernoma, half of the time it’s due to one or more epileptic