CAUK has produced a Public Information Leaflet and a series of information booklets you can download below to help people learn about, understand and cope with the condition.

Written by a leading neurologist, the symptomatic and incidental booklets describe cavernoma, their frequency, symptoms, how the condition is investigated, as well as surgical and non-surgical interventions.

In addition to this material, the genetics booklet also discusses the genetic implications for those who may inherit the condition.