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Happy Holidays 2020

A quick word from our new CEO, Jo Noakes. 

As the end of year draws near I would like to take this opportunity to wish you all a very Merry Christmas and a Happy New Year.

2020 has been filled with a multitude of challenges, every year is different but this one has been filled with more change than normal and more than we could ever have expected.

The team here at CAUK want to take this time to reflect and thank you all for your continued support and encouragement. 

Stay safe, look after one another and we look forward to a successful and much different 2021!

Jo Noakes, CEO

We have a busy 2021 planned already;

January Events

  • Thursday 14th
    Virtual Coffee Morning – 11am
  • Thursday 21st 
    David White – Predicting Cavernoma Bleeds – 11am
  • Tuesday 26th
    Life with Cavernomas vs Life Despite Cavernomas with author Debs Brandon – 7pm
  • Wednesday 27th
    Devon & Cornwall Virtual Coffee Morning – 11am
  • Thursday 28th
    Dorchester Virtual Coffee Morning – 11am
    David White – “Cavernoma Genetics” –  7pm 
  • Cavernoma Alliance Scotland
    Launching Wednesday 20th Jan 11am
  • My Cavernoma Voice – Young People Support Project Launching February 4th
  • Membership / Medical Cards launching Jan 2021
  • More information to follow 🙂

For more information see our events page or email us at

Therapy Sessions

Our wonderful Therapists are back and running two courses starting in January 2021. If you have attended our group Therapy before, you are welcome to re-attend these groups.

Living with someone who is living with Cavernoma
This group is for Carers and supporters of people diagnosed with Cavernoma. This is a safe place to connect with other wonderful carers and share information and experiences. Wednesday evenings 7-8pm – Drop in session. Starts Wednesday 20th Jan 2021. Meetings will run till July 2021.
Living with Cavernoma
This group is for anyone diagnosed with Cavernoma who would like to meet others and be part of a supportive group discussing the day to day impact of living with a rare condition. Monday afternoons 2-3pm- Drop in session. Starts Monday 11th Jan 2021 Meetings will run till July 2021.

To register for any of our therapy courses, please email

Please see our therapy page for more information.

Finally, please don’t forget about our Annual Survey, available here.