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Meet others affected by cavernoma!

Having a cavernoma, or a loved one with a cavernoma, can affect every aspect of our lives beyond only the physical symptoms.  Living with a rare neurological condition can be overwhelming, confusing and isolating.  At CAUK we understand how important community can be in helping people cope with all things related to cavernoma.

Over the years, our members have established a genuine, empathetic and friendly community who support and encourage each other online.

Our online cavenroma community meets on the second Thursday of every month at 11am for an informal online chat (via Zoom).  The hour-long sessions provide a unique opportunity to meet and connect with others with whom you can share experiences, questions and grievances, and with whom you can rely on to really understand what you are going through.

Anyone can join our community chats – whether you are patient, carer, sibling, caregiver or friend you are welcome.  If you’d like to join us please email events@cavernoma.org.uk; you’ll receive the link to join and be added to our community email list so that you can access all sessions.

To find our more about the different support services CAUK offers, check out the support section of our website

We look forward to seeing you online.

Team CAUK.

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