Therapy
We offer online one-to-one and group therapy with an experienced therapist who understands cavernoma. With long NHS waiting times and many therapists unfamiliar with the condition, we know how important it is to have support from someone who truly gets it.
Living with cavernoma affects more than just the physical symptoms and can take a toll on your mental and emotional wellbeing. Whether you have cavernoma or care for someone who does, life can sometimes feel exhausting and overwhelming. Thanks to a generous grant from AxIOM Neuromonitoring, we offer therapy with our qualified therapist, Robyn Hughes from Connection Space.
Individual Therapy
Whether you live with cavernoma or support someone who does, we can offer all UK residents, including young people:
• 4 sessions free
• or 8 sessions at £25 per session
We currently have no waiting list. We just ask that you register as a free CAUK member first.
Each session lasts 50 minutes and takes place on Zoom or over the phone. Payments are made directly to Robyn, who is an independent practitioner and has been supporting our community since 2019.
To request therapy email helpline@cavernoma.org.uk.
Group Therapy
We offer themed group therapy in small groups of up to ten people. Each group runs as a 4-part series over eight weeks, meeting fortnightly on Thursdays from 19:30 to 21:00, and offers a gentle, supportive space to share or simply listen. These groups are open to UK-based CAUK members aged 18 and over where the theme is relevant.
The dates below are all for 2026:
- Newly diagnosed: 5 Feb, 19 Feb, 5 Mar, 19 Mar
- Supporters (carers): 23 Apr, 7 May, 21 May, 4 Jun
- Familial cavernoma: 18 Jun, 2 Jul, 16 Jul, 30 Jul
- Spinal cavernoma: 3 Sep, 17 Sep, 1 Oct, 15 Oct
- Brainstem cavernoma: 22 Oct, 5 Nov, 19 Nov, 3 Dec
- Open (monthly) – 8 Jan, 12 Feb, 12 Mar, 9 Apr, 14 May, 11 Jun, 9 Jul, no August, 10 Sep, 8 Oct, 12 Nov, 10 Dec
Cavernoma and Mental Well-Being
Struggling with your mental wellbeing is something many people with cavernoma experience. In fact, over 50% of our community tell us that mental wellbeing is one of their biggest challenges – whether that’s due to the emotional impact of diagnosis, the uncertainty of ‘wait and see’, adapting to symptoms like seizures or going through surgery.
Feelings of anxiety, low mood, or emotional overwhelm after surgery are especially common – and entirely valid. It’s important to know that this is not a sign of weakness or failure, but a natural response to everything your brain and body have been through. Visit our webpage on Cavernoma and Mental Well-being to find out what can help alongside therapy.