Skip to content
Membership
Join CAUK today
Donate
Support CAUK today
Contact Us
Phone or email
Cavernoma
What is a Cavernoma?
Fast Facts
Treatment Options
Medical Management
Neurosurgery
Stereotactic Radiosurgery
Spinal Cavernoma
Types of Cavernoma
Asymptomatic Cavernoma
Symptomatic Cavernoma
Spinal Cavernoma
Familial Cavernoma
Cavernoma in Children
CCM3 Syndrome
All Information Leaflets
Symptoms
Haemorrhage
Seizures
Mental well-being
Headaches
Fatigue
Cavernoma Stories
Roxanna – Asymptomatic
Emily – Temporal Lobe
Sacha – Brainstem
Jade – Familial
Georgina – Spinal
Michael – Supporter
Questions to ask your Doctors
Science of Cavernoma
Useful Links
Lifestyle
School and College
Driving
Flying
Insurance
Head Injury
HRT and Oral Contraception
Pregnancy
Gut and Diet
Get Support
Our Services
Helpline
Events
Therapy
Buddying
Medical Alert Cards
Webinar Recordings
Claiming Benefits
Podcast
Members Login
Support Us
Donate
Fundraise
Annual Snowdon Climb
Play the Lottery
Share Your Story
Volunteer
Shop
Professionals
Medical Advisory Board
Guidance for Medical Professionals
Guidance for Educators
Research
Top 10 Research Priorities
UK Research
International Research
Gene Therapy
CARE Study
European Patient Survey 2024
About Us
About Us
Team
Strategy 2025-2030
Lived Experiences Report
Impact Report
Finances
Contact Us
Give Feedback
Policies
Privacy Policy
Safeguarding Policy
Cavernoma
What is a Cavernoma?
Fast Facts
Treatment Options
Medical Management
Neurosurgery
Stereotactic Radiosurgery
Spinal Cavernoma
Types of Cavernoma
Asymptomatic Cavernoma
Symptomatic Cavernoma
Spinal Cavernoma
Familial Cavernoma
Cavernoma in Children
CCM3 Syndrome
All Information Leaflets
Symptoms
Haemorrhage
Seizures
Mental well-being
Headaches
Fatigue
Cavernoma Stories
Roxanna – Asymptomatic
Emily – Temporal Lobe
Sacha – Brainstem
Jade – Familial
Georgina – Spinal
Michael – Supporter
Questions to ask your Doctors
Science of Cavernoma
Useful Links
Lifestyle
School and College
Driving
Flying
Insurance
Head Injury
HRT and Oral Contraception
Pregnancy
Gut and Diet
Get Support
Our Services
Helpline
Events
Therapy
Buddying
Medical Alert Cards
Webinar Recordings
Claiming Benefits
Podcast
Members Login
Support Us
Donate
Fundraise
Annual Snowdon Climb
Play the Lottery
Share Your Story
Volunteer
Shop
Professionals
Medical Advisory Board
Guidance for Medical Professionals
Guidance for Educators
Research
Top 10 Research Priorities
UK Research
International Research
Gene Therapy
CARE Study
European Patient Survey 2024
About Us
About Us
Team
Strategy 2025-2030
Lived Experiences Report
Impact Report
Finances
Contact Us
Give Feedback
Policies
Privacy Policy
Safeguarding Policy
Search
We are Cavernoma Alliance UK
Founded in 2005, our aim is to provide support and information for all those affected by cavernoma including friends, family, carers and professionals.
About Us
We are Cavernoma Alliance UK
Founded in 2005, our aim is to provide support and information for all those affected by cavernoma including friends, family, carers and professionals.
About Us
We are Cavernoma Alliance UK
Founded in 2005, our aim is to provide support and information for all those affected by cavernoma including friends, family, carers and professionals.
About Us
What are Cavernoma?
A cavernoma is made up of abnormal blood vessels and can be found in the brain and/or spinal cord and looks like a raspberry.
Find out more
Save our Services
👉 We really need your help! Please considering donating to our COVID19 recovery fund so that we can continue to help & support those affected by our rare condition Cavernoma & advance the search for a cure.
Support our Crowdfunder
Care Study
Find out about our research study to find out what approach is best for treatment of people with a brain cavernoma.
More Information
COVID-19
Find out more about COVID-19, the vaccine and Cavernoma
More Info
Support for you
We aim to support people affected by cavernoma in a number of ways from providing information, putting them in contact with others, hosting events or simply being on the end of the telephone for a chat.
Our Services & Support
CaverFamilies
The CaverFamilies branch of CAUK was set up in April 2012 to leave a legacy of support for children living with Cavernoma.
Find out more
Webinars
Find out more about our support and information webinars
Find out more
Medical Alert Cards
Our medical alert cards are a free service for members of CAUK, each card is personalised with a colour photo, full name and emergency contact details.
Apply Here
