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Cavernoma
What is a Cavernoma?
Fast Facts
Asymptomatic Cavernoma
Symptomatic Cavernoma
Spinal Cavernoma
Genetics of Cavernoma
Cavernoma in Children
Questions to ask your Doctors
Cavernoma Related Epilepsy (CRE)
The Science of Cavernoma
All Information Leaflets
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Driving & Cavernoma Related Epilepsy
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The Gut and Emulsifiers
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Sacha – Brainstem Cavernoma
Emily – Temporal Lobe Cavernoma
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Cavernomas: A Randomised Effectiveness (CARE) Study
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Cavernoma
What is a Cavernoma?
Fast Facts
Asymptomatic Cavernoma
Symptomatic Cavernoma
Spinal Cavernoma
Genetics of Cavernoma
Cavernoma in Children
Questions to ask your Doctors
Cavernoma Related Epilepsy (CRE)
The Science of Cavernoma
All Information Leaflets
Useful Links
Lifestyle
Driving & Cavernoma
Driving & Cavernoma Related Epilepsy
Travel Insurance
Education
Pregnancy
HRT and Oral Contraception
Neurofatigue
The Gut and Emulsifiers
Vitamin D
Support
Our Services
Helpline
Buddying
Counselling
Medical Alert Cards
Events
Webinar Recordings
Claiming Benefits
Podcast
Blogs
Sacha – Brainstem Cavernoma
Emily – Temporal Lobe Cavernoma
Members Login
Get Involved
Donate now
How to donate
Climb Snowdon
Fundraising ideas
Volunteering
Online shop
Professionals
Medical Advisory Board
Guidance for Medical Professionals
Guidance for Educators
Cavernomas: A Randomised Effectiveness (CARE) Study
Medications in Development
Latest Research
About Us
About Us
Our Team
Our Mission, Strategy and Values
Lived Experiences Report
Impact Report
Annual Accounts and Report
Contact Us
Policies
Privacy Policy
Safeguarding Policy
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We are Cavernoma Alliance UK
Founded in 2005, our aim is to provide support and information for all those affected by cavernoma including friends, family, carers and professionals.
About Us
We are Cavernoma Alliance UK
Founded in 2005, our aim is to provide support and information for all those affected by cavernoma including friends, family, carers and professionals.
About Us
We are Cavernoma Alliance UK
Founded in 2005, our aim is to provide support and information for all those affected by cavernoma including friends, family, carers and professionals.
About Us
What are Cavernoma?
A cavernoma is made up of abnormal blood vessels and can be found in the brain and/or spinal cord and looks like a raspberry.
Find out more
Save our Services
👉 We really need your help! Please considering donating to our COVID19 recovery fund so that we can continue to help & support those affected by our rare condition Cavernoma & advance the search for a cure.
Support our Crowdfunder
Care Study
Find out about our research study to find out what approach is best for treatment of people with a brain cavernoma.
More Information
COVID-19
Find out more about COVID-19, the vaccine and Cavernoma
More Info
Support for you
We aim to support people affected by cavernoma in a number of ways from providing information, putting them in contact with others, hosting events or simply being on the end of the telephone for a chat.
Our Services & Support
CaverFamilies
The CaverFamilies branch of CAUK was set up in April 2012 to leave a legacy of support for children living with Cavernoma.
Find out more
Webinars
Find out more about our support and information webinars
Find out more
Medical Alert Cards
Our medical alert cards are a free service for members of CAUK, each card is personalised with a colour photo, full name and emergency contact details.
Apply Here
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