Webinars
Founded in 2005, our aim is to provide support and information for all those affected by cavernoma including friends, family, carers and professionals.
CAUK hosts alot of online webinars using Zoom to provide support and assistance to our members.
Our primary aim at CAUK is to provide those affected by cavernoma with relevant and up-to-date information and support. you can access this support via many channels, including online via our ‘CAUK Virtual Support Series’.
We use Zoom for the majority of our online webinars. For details on when we run webinars, and how to register to join them, please see our events page. Zoom is free software used by many organisations to host their webinars or online meetings/get together’s.
For more information on how to how to install & use zoom, please go here.
We even host interactive sessions for our CaverFamily community.
Our webinars are accessible free of charge to all members, whether you are a patient, family member, carer or friend.
We’re always looking for ideas on topics for presentations and for volunteer speakers to share their unique cavernoma stories – if you are have any suggestions or you would like to volunteer as a speaker, please get in touch by using the contact form below.
You can find recordings of some of our webinars below,
CCM Genetics and You
CCM Genetics and You with Connie Lee, CEO of Angioma Alliance. This is a webinar from the Angioma Alliance programme, placed here by kind permission of Connie Lee.
Fiona Holiday – The Elephant and The Thinking Brain – Emotions, Experiences and Well-Being (March 16 2021)
What we think, how we feel and how we relate to other are driven by the way our brains, bodies and minds work together. During this session, CAUK therapist Fiona will explor ehow our brains and bodies search for safety and respond to danger. We’ll talk about emotions and stress and what happens when we feel overwhelmed by danger and experience trauma.
Ian Kamaly-Asl – The Implications of Screening for Cavernous Malformations and Risk with Activities for Patients with Cavernous Malformations
Doctor Ian Kamaly discusses what options there are for screening of both patients with known cavernous malformations and family members who may possibly be affected. He then went on to give a very useful discussion on participation in sport and other activities for patients with known cavernous malformations.
They said No, I said Yes! with Will Sears
Will is an inspirational 14 year old member of CAUK through the Caverfamiles group. In this webinar where he is accompanied by his mum, he shares the story of his cavernoma and epilepsy journey and how he continues to live a full, exciting and happy life doing the things he loves, despite his condition
Member Success with PIP Application with Kathryn Douthwaite
In this webinar Kathryn who has had significant seizures due to her cavernoma and has had to retire from her job at local government will share her experience and top tips for a successful application
My journey with Spinal Cavernoma by Kay Garner
Kay Garner, 29, has a Cavernoma at T2 in her spinal cord. The cavernoma caused C7 complete paralysis when it haemorrhaged at the age of 26. Join her as she discussed how the discovery of the cavernoma has changed her life.