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Latest News

Stream CAUK webinars on our YouTube channel!

In case you didn’t already know, you can stream CAUK webinars at your leisure via our YouTube channel!

We’ve recently uploaded our Youtube channel with multiple recordings from this summer’s CAUK Annual Forum.  You can now enjoy a range of lectures by expert guest speakers from around the world on a number of cavernoma-related topics.  

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Latest Blog

“I knew my body better than anyone else. I learned to keep asking questions and always get a 2nd opinion.” Jac’s Cavernoma Story

My name is Jac Sinnott and I’m 39 years old. My cavernoma was located near my thalamus. I was diagnosed in July 2021 after hospitalisation following a bleed. I presented myself to the hospital with persistent symptoms which a couple of different GP practices said were migraines. Initially, my local hospital didn’t know what was causing my symptoms and it took a long time to get answers, especially as we were still in lockdown due to the pandemic.
My most recent symptoms appeared in late June 2021 and they presented as pins and needles down my left side as well as weakness and numbness on that side. I also had visual disturbances. Each episode would last for 30 minutes to an hour. 

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