CAUK are proud to be one of over 50 charities that have come together to voice concerns over access to mental health services for those
‘How to successfully manage tinnitus with cavernoma’ 19:30 – 20:30 BST, Wednesday 25th of October 2023 Mr Edmund Farrar Do you suffer from tinnitus as
In case you didn’t already know, you can stream CAUK webinars at your leisure via our YouTube channel!
We’ve recently uploaded our Youtube channel with multiple recordings from this summer’s CAUK Annual Forum. You can now enjoy a range of lectures by expert guest speakers from around the world on a number of cavernoma-related topics.
“I knew my body better than anyone else. I learned to keep asking questions and always get a 2nd opinion.” Jac’s Cavernoma Story
My name is Jac Sinnott and I’m 39 years old. My cavernoma was located near my thalamus. I was diagnosed in July 2021 after hospitalisation following a bleed. I presented myself to the hospital with persistent symptoms which a couple of different GP practices said were migraines. Initially, my local hospital didn’t know what was causing my symptoms and it took a long time to get answers, especially as we were still in lockdown due to the pandemic.
My most recent symptoms appeared in late June 2021 and they presented as pins and needles down my left side as well as weakness and numbness on that side. I also had visual disturbances. Each episode would last for 30 minutes to an hour.
Join Dr Shelley Stevens to discuss the gut-cavernoma connection, the impact of emulsifiers & more!
Dr Stevens is a toxicologist, and, being a mother of a child with brainstem cavernoma, Dr. Stevens has a special interest in the gut-cavernoma connection.
Join host Steve Cairns as he talks about the changing face of Neuro Rehab and his case study with a Multiple Cavernoma patient.