Latest News
Annual Conference 2024 – registration is now live
Registration is now open for our 2024 Annual Forum taking place Saturday the 22nd of June from 10:00 to 16:00 via zoom. To secure your
Snowdon Climb for Cavernoma Awareness Month, 1st of June
On the 1st of June 2024, over 35 people will be climbing Snowdon to raise awareness and funds for Cavernoma Awareness Month in June. We
Results of the ‘Cavernomas: A Randomised Effectiveness (CARE) Study’
We’re really pleased to share that the results of ‘Cavernomas: A Randomised Effectiveness (CARE) Study’ have now been published in The Lancet Neurology. This pilot
Latest Blog
“I tell my story so that others take matters seriously when something in your body tells you something is wrong.”
Tash tells her story of discovering a cavernoma bleed, during lockdown, just months after surgery for an unrelated spinal condition. She discusses her difficult journey to diagnosis, lack of communication from her doctors and how she managed telling her friend and family about her diagnosis.
“Just a few weeks ago surgeons removed my entire left hippocampus.” Vera’s surgery update
When we last heard from Vera back in June she was waiting for a date for surgery to remove her cavernoma. Fast forward a few months and Vera is now recovering from this major surgery. She has kindly shared an update, detailing her experience of neurosurgery.
“My little boy reminds me that the future is bright” – Laura’s Cavernoma Story
31 year old airline captain Laura was diagnosed with a cavernoma in June 2022 just ONE DAY before the early birth of her now 4 month old baby boy Karl-William via C-section. Laura’s situation meant doctors had no choice but to perform brain surgery to remove a bleeding cavernoma shortly after the arrival of her baby.
Laura has kindly shared her cavernoma story to raise awareness of her condition and inspire others in a similar position.