Latest News
CARE TRIAL: LATEST NEWS!
Care Study site teams across the country have successfully recruited 57 participants for the first ever pilot #clinicaltrial for #cavernoma. There are now only 3 participants left to recruit before the end of April.
Young Carers Action Day: Make Time for Young Carers
Today, March 15th, we come together with organisations across the country to recognise young carers.
Every day, thousands of young people across the UK help look after someone in their family who is ill, disabled or has a mental health problem or an addiction.
Up for a challenge? Join our Snowdon Climb for Cavernoma Awareness Month
On Saturday 3rd of June we’re taking a team up Snowdon, the highest mountain in Wales, carrying our CAUK flag all the way to the summit! It’s our hope whilst trekking to both raise awareness about cavernoma and raise funds for CAUK’s services.
Latest Blog
“I knew my body better than anyone else. I learned to keep asking questions and always get a 2nd opinion.” Jac’s Cavernoma Story
My name is Jac Sinnott and I’m 39 years old. My cavernoma was located near my thalamus. I was diagnosed in July 2021 after hospitalisation following a bleed. I presented myself to the hospital with persistent symptoms which a couple of different GP practices said were migraines. Initially, my local hospital didn’t know what was causing my symptoms and it took a long time to get answers, especially as we were still in lockdown due to the pandemic.
My most recent symptoms appeared in late June 2021 and they presented as pins and needles down my left side as well as weakness and numbness on that side. I also had visual disturbances. Each episode would last for 30 minutes to an hour.
The Gut – Cavernoma Connection Emulsifiers and More with Dr. Shelley Stevens
Join Dr Shelley Stevens to discuss the gut-cavernoma connection, the impact of emulsifiers & more!
Dr Stevens is a toxicologist, and, being a mother of a child with brainstem cavernoma, Dr. Stevens has a special interest in the gut-cavernoma connection.
Steve Cairns – Recovering Movement Following Stroke & Brain Surgery, a New Perspective
Join host Steve Cairns as he talks about the changing face of Neuro Rehab and his case study with a Multiple Cavernoma patient.