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Funding Update: multiple new grants secured to support the cavernoma community!

We are so grateful to our community, and everyone who contributed,  for all of the support we have received!

As you may be aware, the post COVID-19 period has proved extremely difficult for many charities, particularly small charities for rare diseases like CAUK, to access vital grants and funding to support their work. For CAUK specifically, this increased competition for financial assistance came at the same time as a sharp increase in demand for our support services. Wait times between diagnosis and consultation have significantly lengthened and CAUK has been there to bridge the gap in information and support for those affected by cavernoma. Our awareness-raising efforts over the years mean that more and more clinicians are sign-posting their patients to our services. We have been able to adapt and expand accordingly, and are very proud of the work we do.

Earlier this year, we reached a critical point where we had no choice but to double down our grant-writing efforts and appeal to our community for help. We are really pleased to say that, thanks to our incredible, generous, supportive community, we have been able to reach our target of raising £30,000 for the cavernoma community. We have now closed our Crowdfunder appeal. We are so grateful to those of you who were able to donate to and share our fundraising page, and who got involved in appealing for funding. To the many, many individuals and families who set up fundraising activities for us, we can’t thank you enough.

New grants secured!

While our amazing community was busy raising funds, the team at CAUK continued to apply for appropriate grants and funding from allocating bodies behind the scenes. We are really pleased to say that several of our applications have been successful. We have received substantial grants to continue our work. Some of the grants we have received include;

£15,000 – The Garfield Weston Foundation

We have received £15,000 over 3 years, 2022 – 2025, to be used towards programmes supporting adults affected by cavernoma

£5000 – The February Foundation

The February Foundation has awarded CAUK a one-off grant of £5000 where funds will be used for direct support for adults, children, young people and families affected by cavernoma. We arevery grateful to the February Foundation for their continued support over the years.

£17,000 – Contact for families with disabled children funded by the Pears Foundation

Pears has awarded CAUK £17,000 over 2 years for the funding of support services and activities for children, young people and families affected by cavernoma. This is an award jointly funded by DCMS and Connect and administered by Pears.

A massive thankyou!

We are so grateful to everyone for supporting Cavernoma Alliance UK, and for continuing to support us into the future. The funding we have secured will certainly go a long way to helping us to help you. However, we are not stopping now; the CAUK team continues to write and apply for grants and funding so that we can keep supporting those affected by cavernoma and continue to develop vital research to improve treatment for cavernoma patients.

Thank you all.