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We are Cavernoma Alliance UK

Founded in 2005, our aim is to provide support and information for all those affected by cavernoma including friends, family, carers and professionals.

We are Cavernoma Alliance UK

Founded in 2005, our aim is to provide support and information for all those affected by cavernoma including friends, family, carers and professionals.

We are Cavernoma Alliance UK

Founded in 2005, our aim is to provide support and information for all those affected by cavernoma including friends, family, carers and professionals.

What are Cavernoma?

A cavernoma is made up of abnormal blood vessels and can be found in the brain and/or spinal cord and looks like a raspberry.

Save our Services

👉 We really need your help! Please considering donating to our COVID19 recovery fund so that we can continue to help & support those affected by our rare condition Cavernoma & advance the search for a cure.

Support our Crowdfunder

Find out about our research study to find out what approach is best for treatment of people with a brain cavernoma.

More Information

Find out more about COVID-19, the vaccine and Cavernoma

Support for you

We aim to support people affected by cavernoma in a number of ways from providing information, putting them in contact with others, hosting events or simply being on the end of the telephone for a chat.

Our Services & Support

The CaverFamilies branch of CAUK was set up in April 2012 to leave a legacy of support for children living with Cavernoma.

Find out more about our support and information webinars

Medical Alert Cards

Our medical alert cards are a free service for members of CAUK, each card is personalised with a colour photo, full name and emergency contact details.

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Cavernoma Alliance UK

PO Box 366
Watlington
Oxfordshire
OX10 1GF
Registered Charity 1114145
Scottish Charity SC048458

Social Media

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Become a member

Join CAUK today to gain access to our support services and free events

© Copyright 2020 Cavernoma Alliance UK. All Rights Reserved

CAUK does not endorse any form of management or treatment for cavernoma, nor any medication. Any individual's treatment, management or medication should be discussed with your doctor (GP, clinician) or other health-care provider.