Founded in 2005, our aim is to provide support and information for all those affected by cavernoma including friends, family, carers and professionals.
CAUK hosts alot of online webinars using Zoom to provide support and assistance to our members.
Our primary aim at CAUK is to provide those affected by cavernoma with relevant and up-to-date information and support. you can access this support via many channels, including online via our ‘CAUK Virtual Support Series’.
We use Zoom for the majority of our online webinars. For details on when we run webinars, and how to register to join them, please see our events page. Zoom is free software used by many organisations to host their webinars or online meetings/get together’s.
For more information on how to how to install & use zoom, please go here.
We even host interactive sessions for our CaverFamily community.
Our webinars are accessible free of charge to all members, whether you are a patient, family member, carer or friend.
We’re always looking for ideas on topics for presentations and for volunteer speakers to share their unique cavernoma stories – if you are have any suggestions or you would like to volunteer as a speaker, please get in touch by using the contact form below.
You can find recordings of some of our webinars below,
Will is an inspirational 14 year old member of CAUK through the Caverfamiles group. In this webinar where he is accompanied by his mum, he shares the story of his cavernoma and epilepsy journey and how he continues to live a full, exciting and happy life doing the things he loves, despite his condition
In this webinar Kathryn who has had significant seizures due to her cavernoma and has had to retire from her job at local government will share her experience and top tips for a successful application
This amazing webinar tells the story of Ann and Ioana Atkin’s – a mother and daughter’s journey with Cavernoma.
Do you have questions about Gamma Knife surgery also called Stereotactic radiosurgery? This is a lesser known treatment for cavernoma sometimes offered when standard surgery cannot take place. In the webinar recorded here Elliot Langstaff one of our CaverFamilies young members shares his positive experience with Gamma Knife Surgery.