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In October 2022 I had a fall out of bed; I bumped my head quite hard on my bedside table and had a nasty lump on the side of my head (I am so clumsy!).  A few days later I started having bad dizzy spells especially at night and when I laid down. One night, I got up to use the bathroom and I blacked out. I just thought I had concussion from the bump…

I was first diagnosed with my Cavernoma when I was 18.

I was out shopping and felt completely normal – the next thing all I could see was the bottom of a clothing rail.  It then felt like I was opening and closing my eyes continuously. I realised I was in an ambulance, and I then remember being rushed down a hospital corridor, then to a hospital room.

My name is Jake Mellor, I am 31 years old and had a right frontal lobe symptomatic cavernoma. Here is my cavernoma story….
I had a seizure on the 24th of September whilst I was getting into bed to watch TV. My partner found me on the floor with blood on my face (I had bitten the inside of my mouth), I was sweating, very confused and couldn’t walk or talk properly. The next day I took my blood pressure which was extremely low, and I generally felt unwell. I originally thought it was due to stress and tiredness with having my own carpentry business, but I couldn’t shake it off so on Monday the 26th of September I ended up in hospital at A&E.

In September 2021 I was diagnosed with cerebral cavernoma – a benign tumor in the right temporal lobe – and was told that this tumor had been with me since I was born.

My cavernoma was located on right temporal lobe. I was diagnosed on 27th July 2022. My symptoms mainly included severe headaches that the Doctors (GPs, Neurologists) said were episodes of migraine.