What we think, how we feel and how we relate to other are driven by the way our brains, bodies and minds work together. During this session, CAUK therapist Fiona will explor ehow our brains and bodies search for safety and respond to danger. We’ll talk about emotions and stress and what happens when we feel overwhelmed by danger and experience trauma.
Doctor Ian Kamaly discusses what options there are for screening of both patients with known cavernous malformations and family members who may possibly be affected. He then went on to give a very useful discussion on participation in sport and other activities for patients with known cavernous malformations.
Rare Disease Day was established in 2008 by the European Organisation for Rare Diseases (EURODIS). Rare Disease Day began on 29th February 2008 and selected because it was a “rare day”. CAUK Founder, Ian Stuart comments on why its important to our community.
Will is an inspirational 14 year old member of CAUK through the Caverfamiles group. In this webinar where he is accompanied by his mum, he shares the story of his cavernoma and epilepsy journey and how he continues to live a full, exciting and happy life doing the things he loves, despite his condition
In this webinar Kathryn who has had significant seizures due to her cavernoma and has had to retire from her job at local government will share her experience and top tips for a successful application
This amazing webinar tells the story of Ann and Ioana Atkin’s – a mother and daughter’s journey with Cavernoma.