Kay Garner, 29, has a Cavernoma at T2 in her spinal cord. The cavernoma caused C7 complete paralysis when it haemorrhaged at the age of 26. Join her as she discussed how the discovery of the cavernoma has changed her life.
This amazing webinar tells the story of Ann and Ioana Atkin’s – a mother and daughter’s journey with Cavernoma.
Do you have questions about Gamma Knife surgery also called Stereotactic radiosurgery? This is a lesser known treatment for cavernoma sometimes offered when standard surgery cannot take place. In the webinar recorded here Elliot Langstaff one of our CaverFamilies young members shares his positive experience with Gamma Knife Surgery.
We have spoken to a number of teaching staff, done a little research and have put together a few resources which may help you to help your children. Hopefully it might take the pressure off by showing you some new ideas, offer support and show you that you are doing a great job.
It’s January, which is a time for new things, and I’ll be writing a regular (and short!) blog with a focus on emotional wellbeing and thinking about how we can support ourselves and each other. I’d like to think that you will give yourselves a few minutes every now and again to sit down, have a cup of something that you like and take a breath.
In part 5 of our Science of Cavernoma series, David White explores how Cavernoma are formed and develop.
In Part 4 of our Science of Cavernoma Series, David White explores how the gut influences Cavernoma Formation.
Having recently attended and presented at the World Congress for Neuro Rehabilitation, Steve Cairns gives his take on the common perceptions for rehab strategies and outcomes
An excellent introduction into the basics of Cavernoma and answers many of the daily questions anyone living with or affected by Cavernoma may have.
Warning : there are three images of Brain Surgery that some people may find difficult to view.
In part 3 of our Science of Cavernoma, David White explains how cavernomas leak blood.
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