Will is an inspirational 14 year old member of CAUK through the Caverfamiles group. In this webinar where he is accompanied by his mum, he shares the story of his cavernoma and epilepsy journey and how he continues to live a full, exciting and happy life doing the things he loves, despite his condition
In this webinar Kathryn who has had significant seizures due to her cavernoma and has had to retire from her job at local government will share her experience and top tips for a successful application
This amazing webinar tells the story of Ann and Ioana Atkin’s – a mother and daughter’s journey with Cavernoma.
Do you have questions about Gamma Knife surgery also called Stereotactic radiosurgery? This is a lesser known treatment for cavernoma sometimes offered when standard surgery cannot take place. In the webinar recorded here Elliot Langstaff one of our CaverFamilies young members shares his positive experience with Gamma Knife Surgery.
We have spoken to a number of teaching staff, done a little research and have put together a few resources which may help you to help your children. Hopefully it might take the pressure off by showing you some new ideas, offer support and show you that you are doing a great job.
It’s January, which is a time for new things, and I’ll be writing a regular (and short!) blog with a focus on emotional wellbeing and thinking about how we can support ourselves and each other. I’d like to think that you will give yourselves a few minutes every now and again to sit down, have a cup of something that you like and take a breath.
In Part 4 of our Science of Cavernoma Series, David White explores how the gut influences Cavernoma Formation.