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Care Study site teams across the country have successfully recruited 57 participants for the first ever pilot #clinicaltrial for #cavernoma. There are now only 3 participants left to recruit before the end of April.

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CARE PREP: New cutting edge research trial for cavernoma

We are delighted to announce that a consortium, led by CAUK medical advisor Professor Rustam Al-Shahi Salman and comprising of a number of leading clinicians and patient advocacy organisation leaders – including David White of CAUK – has been awarded a grant to initiate the planning of an international ‘platform trial’ to test multiple potential cavernoma medications at a time.

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CARE Study: Newsflash

We are delighted to report that the team at Kings College Hospital London has recently recruited its first two participants for the trial, with one patient randomised for ‘active treatment’ and the other randomised for ‘conservative management’. In equally exciting news, the team at Royal Hallamshire Hospital in Sheffield have recruited their sixth participant!

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The CARE trial’s first active treatment participant, 10 year old Elise, shares her story of successful cavernoma brain surgery.

Elise was diagnosed with cavernomas at just 1 year old, a year a
fter her mother Suzan’s initial diagnosis. After learning to walk and talk, and achieving the typical developmental milestones you might expect of any infant, out of nowhere Elise began to regress. She had suddenly lost all of her acquired skills and Suzan noticed that she was frequently holding her head and screaming in pain.

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CARE Pilot Trial Annoucement

The Cavernomas A Randomised Effectiveness (CARE) pilot trial CAUK is the Patient Group in a consortium also including senior clinicians with a special interest in

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