Latest News
CARE TRIAL: LATEST NEWS!
Care Study site teams across the country have successfully recruited 57 participants for the first ever pilot #clinicaltrial for #cavernoma. There are now only 3 participants left to recruit before the end of April.
Young Carers Action Day: Make Time for Young Carers
Today, March 15th, we come together with organisations across the country to recognise young carers.
Every day, thousands of young people across the UK help look after someone in their family who is ill, disabled or has a mental health problem or an addiction.
Up for a challenge? Join our Snowdon Climb for Cavernoma Awareness Month
On Saturday 3rd of June we’re taking a team up Snowdon, the highest mountain in Wales, carrying our CAUK flag all the way to the summit! It’s our hope whilst trekking to both raise awareness about cavernoma and raise funds for CAUK’s services.
Latest Blog
“I tell my story so that others take matters seriously when something in your body tells you something is wrong.”
Tash tells her story of discovering a cavernoma bleed, during lockdown, just months after surgery for an unrelated spinal condition. She discusses her difficult journey to diagnosis, lack of communication from her doctors and how she managed telling her friend and family about her diagnosis.
“Just a few weeks ago surgeons removed my entire left hippocampus.” Vera’s surgery update
When we last heard from Vera back in June she was waiting for a date for surgery to remove her cavernoma. Fast forward a few months and Vera is now recovering from this major surgery. She has kindly shared an update, detailing her experience of neurosurgery.
“My little boy reminds me that the future is bright” – Laura’s Cavernoma Story
31 year old airline captain Laura was diagnosed with a cavernoma in June 2022 just ONE DAY before the early birth of her now 4 month old baby boy Karl-William via C-section. Laura’s situation meant doctors had no choice but to perform brain surgery to remove a bleeding cavernoma shortly after the arrival of her baby.
Laura has kindly shared her cavernoma story to raise awareness of her condition and inspire others in a similar position.