After recruitment for a new GP in the local community failed to receive any applications, our CAUK Trustee Michelle Nineham got together with her local community to launch a campaign to search for a replacement for the soon-to-retire local doctor.
Raising awareness of cavernoma in the general public and among medical professionals is a priority at CAUK. That’s why, last week, our founder, Ian Stuart,
Our new address is; Cavernoma Alliance UK, PO Box 366, Watlington, Oxfordshire, OX10 1GF
Did you know that there are lots of ways you can donate to and fundraise for CAUK for free?
With the cost of living crisis affecting many households across the country, you might be wondering how you can support those affected by cavernoma without spending any money…
As 2022 draws to a close, I want to take this opportunity to reflect on the past year at CAUK
There is no doubt that 2022 has brought its challenges; the COVID-19 pandemic, competition for funding and grants, and the increasing demand for our services left us in a difficult financial position. Through the hard work and contribution of our community and the CAUK team we have been able to face these challenges together.
Staff member Ailsa, who has a cavernoma in her right thalamus, sat down with the team at Medics4RareDisease to talk about her experience of cavernoma.
The first ever documentary about cavernoma is here!
This very special documentary film, produced by our sister organisation in the US, is the first of it’s kind and provides a unique insight into the lives of those affected by cavernoma.
As we say goodbye to Sian as she starts her well-deserved retirement, we’re excited to welcome back Helen Evans, our former manager from 2018-2019.
We are excited to launch our CAUK Christmas collection, offering you a wonderful range of festive purchases and presents that could suit anyone. But they’re so much more than that – by purchasing something on our shop, or by buying one of our gifts, you’ll be transforming lives and providing a brighter future for those affected by cavernoma & their families.
Sites across the UK and Ireland have so far recruited and randomised 42 patients for either ‘active treatment’ or ‘conservative management’. This takes us to 70% of our recruitment target for the study! We are almost there!
PO Box 366
Watlington
Oxfordshire
OX10 1GF
Registered Charity 1114145
Scottish Charity SC048458
Join CAUK today to gain access to our support services and free events