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News

Former CAUK Trustee, Emily Fletcher, donated £5000 to CAUK after challenging marathon walk!

We are so grateful that, as a result of this epic fundraising challenge, Emily has donated a whopping £5000 to CAUK. Emily is a great friend and support to CAUK, having served as a trustee while living in London from 2013 – 2018. She has been involved in numerous fundraising initiatives over the years; she completed a 2013 half-marathon walk for CAUK, and was the first person to donate to our recent COVID-19 recovery fund.

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CARE PREP: New cutting edge research trial for cavernoma

We are delighted to announce that a consortium, led by CAUK medical advisor Professor Rustam Al-Shahi Salman and comprising of a number of leading clinicians and patient advocacy organisation leaders – including David White of CAUK – has been awarded a grant to initiate the planning of an international ‘platform trial’ to test multiple potential cavernoma medications at a time.

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“Strokes & Bleeding Explained” – live webinar with Daniel Walsh FRCS

It is often very difficult for patients to really understand exactly what happens in their brain, and with a cavernoma, when they have a bleed. What causes a bleed? Is a bleed the same as a stroke? What even is a haemorrhagic stroke?  To answer these questions, we’re thrilled to be welcoming renowned consultant neurosurgeon, and friend of CAUK, Daniel Walsh FRCS for our next live webinar at 11am on  Saturday 8th October.

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CARE Study: Newsflash

We are delighted to report that the team at Kings College Hospital London has recently recruited its first two participants for the trial, with one patient randomised for ‘active treatment’ and the other randomised for ‘conservative management’. In equally exciting news, the team at Royal Hallamshire Hospital in Sheffield have recruited their sixth participant!

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It’s almost time for our 9th annual CaverFamilies Residential!

We are so excited to be packing our bags and getting ready for our 9th annual CaverFamilies Residential this weekend!
Our annual three-day residential retreat is a unique opportunity for families affected by cavernoma to connect, share experiences and spend some good fun, quality time with people who truly understand each other.

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