Happy Retirement Sian. We’ve got big shoes to fill!
It is with heavy hearts, and much gratitude, that we announce the retirement of much-loved CAUK stalwart Sian Oliphant. Sian has been an incredible
August 30, 2022
It is with heavy hearts, and much gratitude, that we announce the retirement of much-loved CAUK stalwart Sian Oliphant. Sian has been an incredible
We are so excited to be packing our bags and getting ready for our 9th annual CaverFamilies Residential this weekend!
Our annual three-day residential retreat is a unique opportunity for families affected by cavernoma to connect, share experiences and spend some good fun, quality time with people who truly understand each other.
Travel insurance is about more than claiming money back from a flight delay or lost luggage; it exists to ensure that you can afford proper
The government has issued a Level 4 alert in anticipation of some of the hottest temperatures ever recorded in the UK, with highs of 40° possible in parts of England.
Many of you will already be feeling the effects of the soaring temperatures. Unlike many Brits who welcome the heat, those with cavernoma often find that hot weather worsens their symptoms and makes their condition even harder to mangage.
My name is Pete and I have a left temporal Cavernoma. This was found as an incidental finding after an MRI for another reason. There is much more to my story and so I shall start at the beginning.
As many of you will know, friend and member of CAUK, Marvin Morgan sadly passed away at the end of 2021 due to complications from
We are really happy to announce, however, that we have been awarded a very generous sum of £5000 from The Edinburgh Neurology Fund, part of NHS Lothian Charity.
We had some great cavernoma-expert guest speakers with us on the day, and the feedback has been great! We know that not everyone in our community was able to attend, and we understand that many of you find it easier to watch the talks at your own pace – and so we’ve uploaded the recordings of the three main talks to our Youtube channel.
The team at CAUK, along with our medical advisors, have been working behind the scenes to create brand new Public Information Leaflet (PIL), with the aim of educating patients, clinicians and the general public about cavernoma.
In 2011 I had a bleed from a Spinal Cavernoma. At the time I had never heard of this rare disease. I had never had any health problems. My symptoms started with a tingly feeling down my left leg. I also went for a bath and my left leg didn’t feel the temperature. I was diagnosed with 1 Cavernoma in my spinal cord and 3 small Cavernoma’s in my brain.
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