To launch our brand new fundraising campaign we wanted to tell you about two of our amazing CAUK supporters, Margaret and Dave, and the challenges they’re taking on for our new campaign. We hope they inspire you to join in and GO FOR IT!
Announcing GO FOR IT! for Cavernoma Alliance UK. This campaign is all about getting involved to raise awareness for cavernoma and having fun while you do it – no matter your age or ability.
In the light of developments concerning the safety of the AstraZeneca vaccine we asked our scientific advisor, Professor Rustam Al-Shahi Salman, for advice for people with cavernoma.
With the easter bank holiday ahead of us, please find below a simple set of Riddles to make your Easter Egg hunts much more fun
We are delighted to be sharing the results from our recent member survey. We are continually working to improve the information and resources we provide so we are extremely grateful and pleased with the feedback we have received. This year has been challenging for everyone and we are so happy that we were able to offer much needed support for our members during this difficult time.
Rare Disease Day was established in 2008 by the European Organisation for Rare Diseases (EURODIS). Rare Disease Day began on 29th February 2008 and selected because it was a “rare day”. CAUK Founder, Ian Stuart comments on why its important to our community.
We all know this year we cannot celebrate Valentines as we do normally with meals out in restaurants and other special trips so we thought we would bring a Covid-19 friendly weekend to you as part of our £8000 for 80yrs campaign
We have spoken to a number of teaching staff, done a little research and have put together a few resources which may help you to help your children. Hopefully it might take the pressure off by showing you some new ideas, offer support and show you that you are doing a great job.
Our wonderful science advisor and all-round key player at CAUK, David White CBE, is turning 80 years old! David has seen CAUK expand amazingly since the early 2000’s. He would love you to join his campaign for his 80th birthday to raise funds as a thank you for the wonderful support that CAUK has provided to us all since its foundation in 2005.
PO Box 366
Watlington
Oxfordshire
OX10 1GF
Registered Charity 1114145
Scottish Charity SC048458
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