Matt: My Family’s Cavernoma Story
Member Matt talks about his wife, Emma, and son, Ollie, and their cavernomas.
March 17, 2022
Member Matt talks about his wife, Emma, and son, Ollie, and their cavernomas.
Our member John Conway provides a diary of events that lead him to brain surgery and the removal of his cavernoma.
Sveta suffered a big brain bleed in 2017 leaving her with balance and coordination issues, and paresis of several of the muscles on the right side of her face and body. Her cavernoma journey has led her to become a visual coach, helping people who have the same issues are her.
Our member Sara, 23 years old, from Spain shares their cavernoma story.
In this video, Kath Charles shares her #RareDisease story just before the four year anniversary of her diagnosis with brainstem cavernoma“It’s the greatest gift I’ve
New Year is traditionally a time of reflection and looking forward: thinking about goals and changes and what we want from the coming months. New Year’s resolutions are talked about, decided upon and probably broken within the first week!
A webinar with Professor Catherine Nelson-Piercy discussing pregnancy and cavernoma – with questions from our members.
At this time of year, we suddenly find ourselves waking up in the dark. Some days, a sense of gloom hangs around all day. Daylight feels in short supply. How do we make it through these long, dark nights?
Minimally invasive approaches, cavernomas and decision making with Bassel Zebian, Consultant Paediatric and Adult Neurosurgeon, King’s College Hospital London
Cavernomas: A Randomised Effectiveness (CARE) Study discussion with Professor Rustam Al-Shahi Salman and Mr Neil Kitchen
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Scottish Charity SC048458