We are delighted to announce that a consortium, led by CAUK medical advisor Professor Rustam Al-Shahi Salman and comprising of a number of leading clinicians and patient advocacy organisation leaders – including David White of CAUK – has been awarded a grant to initiate the planning of an international ‘platform trial’ to test multiple potential cavernoma medications at a time.
It is often very difficult for patients to really understand exactly what happens in their brain, and with a cavernoma, when they have a bleed. What causes a bleed? Is a bleed the same as a stroke? What even is a haemorrhagic stroke? To answer these questions, we’re thrilled to be welcoming renowned consultant neurosurgeon, and friend of CAUK, Daniel Walsh FRCS for our next live webinar at 11am on Saturday 8th October.
We are delighted to report that the team at Kings College Hospital London has recently recruited its first two participants for the trial, with one patient randomised for ‘active treatment’ and the other randomised for ‘conservative management’. In equally exciting news, the team at Royal Hallamshire Hospital in Sheffield have recruited their sixth participant!
It is with heavy hearts, and much gratitude, that we announce the retirement of much-loved CAUK stalwart Sian Oliphant. Sian has been an incredible
We are so excited to be packing our bags and getting ready for our 9th annual CaverFamilies Residential this weekend!
Our annual three-day residential retreat is a unique opportunity for families affected by cavernoma to connect, share experiences and spend some good fun, quality time with people who truly understand each other.
Travel insurance is about more than claiming money back from a flight delay or lost luggage; it exists to ensure that you can afford proper
The government has issued a Level 4 alert in anticipation of some of the hottest temperatures ever recorded in the UK, with highs of 40° possible in parts of England.
Many of you will already be feeling the effects of the soaring temperatures. Unlike many Brits who welcome the heat, those with cavernoma often find that hot weather worsens their symptoms and makes their condition even harder to mangage.
My name is Pete and I have a left temporal Cavernoma. This was found as an incidental finding after an MRI for another reason. There is much more to my story and so I shall start at the beginning.
As many of you will know, friend and member of CAUK, Marvin Morgan sadly passed away at the end of 2021 due to complications from
We are really happy to announce, however, that we have been awarded a very generous sum of £5000 from The Edinburgh Neurology Fund, part of NHS Lothian Charity.
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