As 2022 draws to a close, I want to take this opportunity to reflect on the past year at CAUK
There is no doubt that 2022 has brought its challenges; the COVID-19 pandemic, competition for funding and grants, and the increasing demand for our services left us in a difficult financial position. Through the hard work and contribution of our community and the CAUK team we have been able to face these challenges together.
Staff member Ailsa, who has a cavernoma in her right thalamus, sat down with the team at Medics4RareDisease to talk about her experience of cavernoma.
The first ever documentary about cavernoma is here!
This very special documentary film, produced by our sister organisation in the US, is the first of it’s kind and provides a unique insight into the lives of those affected by cavernoma.
As we say goodbye to Sian as she starts her well-deserved retirement, we’re excited to welcome back Helen Evans, our former manager from 2018-2019.
We are excited to launch our CAUK Christmas collection, offering you a wonderful range of festive purchases and presents that could suit anyone. But they’re so much more than that – by purchasing something on our shop, or by buying one of our gifts, you’ll be transforming lives and providing a brighter future for those affected by cavernoma & their families.
Sites across the UK and Ireland have so far recruited and randomised 42 patients for either ‘active treatment’ or ‘conservative management’. This takes us to 70% of our recruitment target for the study! We are almost there!
Not sending Christmas cards this year? We’ve got you covered. You can now order our brand new, completely FREE festive donation poster instead!
We are so grateful that, as a result of this epic fundraising challenge, Emily has donated a whopping £5000 to CAUK. Emily is a great friend and support to CAUK, having served as a trustee while living in London from 2013 – 2018. She has been involved in numerous fundraising initiatives over the years; she completed a 2013 half-marathon walk for CAUK, and was the first person to donate to our recent COVID-19 recovery fund.
While our amazing community was busy raising funds, the team at CAUK continued to apply for appropriate grants and funding from allocating bodies behind the scenes. We are really pleased to say that several of our applications have been successful. We have received substantial grants to continue our work.
Our peer support scheme – CaverBuddies – is expanding. The next online CaverBuddies training will take place on Thursday 19th Jan from 7pm. Please email
PO Box 366
Watlington
Oxfordshire
OX10 1GF
Registered Charity 1197257
Scottish Charity SC048458