Matt: My Family’s Cavernoma Story
Member Matt talks about his wife, Emma, and son, Ollie, and their cavernomas.
March 17, 2022
Member Matt talks about his wife, Emma, and son, Ollie, and their cavernomas.
Our member John Conway provides a diary of events that lead him to brain surgery and the removal of his cavernoma.
Sveta suffered a big brain bleed in 2017 leaving her with balance and coordination issues, and paresis of several of the muscles on the right side of her face and body. Her cavernoma journey has led her to become a visual coach, helping people who have the same issues are her.
Our member Sara, 23 years old, from Spain shares their cavernoma story.
In this video, Kath Charles shares her #RareDisease story just before the four year anniversary of her diagnosis with brainstem cavernoma“It’s the greatest gift I’ve
Dani shares her story of cavernoma for Cavernoma Awareness Month My name is Dani and I am 28 years old. I live in Edinburgh, but
Our member Melissa shares her cavernoma story for Cavernoma Awareness Month
Our member Jade shares her cavernoma story for Cavernoma Awareness Month
Our member Nina shares her cavernoma story for Cavernoma Awareness Month
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Scottish Charity SC048458
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